Table of Contents – Driscoll Theory Newly Revised
DEDICATION4
ACKNOWLEDGEMENTS5
INTRODUCTION9
CHAPTER 111
- EDS/POTS – A PARADIGM SHIFT11
- What is Dysautonomia and “POTS”?14
- Overview of Intracranial Pressure17
- The Role of High Intracranial Pressure:17
- The Role of Low Intracranial Pressure:21
- Diagnosing and Treating Abnormal CSF Flow:22
- Mast Cells and Inflammation22
- Vascular Abnormalities23
- The Vagus Nerve24
- Patient Position in EDS/POTS27
CHAPTER 230
- INTRACRANIAL PRESSURE – A CLOSER LOOK30
- Why so Much Confusion?30
- CSF Flow33
- High Intracranial Pressure in Children43
- Non-Surgical Treatment Options for IIH (or External Communicating Hydrocephalus)48
- Why so Much Confusion?30
CHAPTER 351
- MAST CELLS — AND WHY THEIR CONTROL ISN’T THE COMPLETE ANSWER51
- Histamine 53
- Looking Beyond Mast Cells 55
CHAPTER 4 59
- THE ROLE OF VASCULAR ABNORMALITIES 59
- Fundus Examination of EDS Patients 59
- Vagus Nerve Compression by High Venous Pressure 62
- EDS/POTS and Endovascular Procedures (“CCSVI” Treatment) 72
CHAPTER 5 76
- NEW THINKING 76
- Shift in EDS/POTS Treatment 76
- Dr. Diana’s Top Picks 78
- New Bugs 84
- Acquired Collagen Damage 84
CHAPTER 6 86
- WHAT WENT WRONG WITH EDS/POTS 86
- Where Have we Failed With EDS/POTS? 86
- What Can be Done for Patients Suffering Today? 89
CHAPTER 7 92
- VALIDATING THE PATIENT 92
- Part 1: Family, Spouses, Doctors and Self 92
- The Problem of Invalidation 92
- Strength to Go On 96
- Part 2: Tips and Tools For Resiliency 96
- Tools in the Toolbox 97
- Hope for the Future/Acceptance 102
- Suggested Reading 103
CHAPTER 8 105
- A PHYSICIAN’S PERSONAL PERSPECTIVE 105
- A Message to EDSers 106
- A Message to Physicians 106
- Looking Forward 107
CHAPTER 9 108
- GLUTEN AND EHLERS-DANLOS SYNDROME 108
- Navigating The Many Ways Gluten Can Impact Your Health 108
- Autoimmune reaction to Gluten- Celiac Disease 109
- Gluten Intolerance 110
- Wheat Allergy 110
- Gluten Maldigestion 111
- Gluten Chemical Reaction 111
CHAPTER 10 113
- THE PATIENTS SPEAK 113
- Emily’s Story 113
- My Story 120
- A Letter From Asher 123
- Our Journey to a Diagnosis 124
- I Have My Life Back 125
- The Ten Year Headache 126
- Our Journey for Hope 127
- My Son’s Journey 128
CHAPTER 11 129
- DIAMOX PEARLS 129
- Common Side Effects 129
- Allergies 130
- Adverse effects: 130
- Contraindications: 130
- Uncommon Contraindications 130
- Clinical Pearls 131
ADDENDUM 134
- Our Research and “Invisible Illness” 134
- Information on Testing and Treatment of EDS/POTS 136
ABOUT THE MEDICAL AUTHORS 137
- Diana Driscoll, O.D. 137
- Sharon Meglathery, M.D. 138
- Christine Doherty, N.D. 139
- Joao Paulo Ferreira, M.D. 140
- Ananya De, Ph.D. 141
- James Pazun, Ph.D. 142