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THE DRISCOLL THEORY PART 2
Posted: 13 March 2012 06:22 PM   [ Ignore ]  
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OMG!  Dr. Diana, I am only about 40 pages in and ... WOW!  I could not put it down, but because my neck is aching, I had to put it aside for now LOL!  The Driscoll Theory is so well written.  It is concise, easy to follow, easy to understand and it flows very well.  The introduction was amazing, clearly outlining everything that would be covered.  I am amazed, and although I am only part way in, I don’t think it could have been written any better.  Congratulations!  This is a HUGE step for us to get the recognition and treatment we deserve.  Thanks again Dr. Diana.  I can’t wait to finish reading The Driscoll Theory Part 2.
MJ

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Posted: 13 March 2012 07:44 PM   [ Ignore ]   [ # 1 ]  
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Very interesting theories. I need to read it again as it is pretty complicated.  I find the correlation between external hydrocephalus and decreased heart function very interesting, as my 9 year old son had diagnosed external hydrocephalus as and infant and recently had a cardiac ultrasound with an ejection fraction of 45%.  I am wondering if his the external hydrocephalus is not truely resolved.  They said it would resolve on it own and it was improving when they repeated a cat scan at age 2 1/2.  He also appears to have gastroparesis - he is on a proton inhibitor for reflux which improved his stomach pain but he still complains of being full and does not eat well.  I thought this was the cause of his growth delay but based on the theory part 1 it could be that his growth hormone is effect due to the pressure on the hypothalamus? right? 

Thanks again for publishing these theories.

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Posted: 17 March 2012 09:26 PM   [ Ignore ]   [ # 2 ]  
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MJ - 13 March 2012 06:22 PM

OMG!  Dr. Diana, I am only about 40 pages in and ... WOW!  I could not put it down, but because my neck is aching, I had to put it aside for now LOL!  The Driscoll Theory is so well written.  It is concise, easy to follow, easy to understand and it flows very well.  The introduction was amazing, clearly outlining everything that would be covered.  I am amazed, and although I am only part way in, I don’t think it could have been written any better.  Congratulations!  This is a HUGE step for us to get the recognition and treatment we deserve.  Thanks again Dr. Diana.  I can’t wait to finish reading The Driscoll Theory Part 2.
MJ

Oh, MJ, that is so great to hear! Even I fell asleep a few times trying to read it, so that is a huge compliment. I’m kind of a pictur-book sort of person (ha), so I knew I needed to include some diagrams and very clear pictures, MRI’s, etc. of what I was trying to describe. I hope those helped, too. Thank you again for your kind words. Big hug, smile Diana

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Dr.Diana, therapeutic optometrist disabled by EDS/POTS/ME/CFS for a decade, now recovered and practicing full-time at POTS Care cheese

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Posted: 18 March 2012 08:23 PM   [ Ignore ]   [ # 3 ]  
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Dr. Diana - 17 March 2012 09:26 PM
MJ - 13 March 2012 06:22 PM

Oh, MJ, that is so great to hear! Even I fell asleep a few times trying to read it, so that is a huge compliment. I’m kind of a pictur-book sort of person (ha), so I knew I needed to include some diagrams and very clear pictures, MRI’s, etc. of what I was trying to describe. I hope those helped, too. Thank you again for your kind words. Big hug, smile Diana

Yes, the pictures are a HUGE help!  You don’t have to stop reading and do a search on line.  Everything is right there in front of you - how convenient!  It is one thing to read about something being described, but to actually see it makes a big difference.  For instance, I described my SEVERELY distended veins and accompanying SEVERE symptoms to an internist, and she wasn’t taking me very seriously, however, on my next visit, I played a video clip (of the veins/symptoms) on my phone for her, and she was EXTREMELY concerned and made an immediate referral.  Pics make a difference!

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