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I’m sure we can all relate
Posted: 12 March 2015 08:53 AM   [ Ignore ]  
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I just posted on my blog and I am thinking that many of you will be able to relate to it. Thank God for this group and the support that we can give each other!! Here is the reason that I blogged for today….. Once I was very hurt by a friend who told me that she didn’t want to hear anything about my health. I don’t have a job, so nothing to talk about there, I don’t have a husband or children, so nothing to talk about there, I am stuck at home all the time and nothing to talk about there except what all I can’t get done anymore and I sure don’t want to think about that as it is really depressing, so what else was there for me to say. Even at that, when I did talk to this friend about medical things, they didn’t understand that I was positive about it because finding out a new something that is wrong with you sometimes explains something else which helps and that to me is positive. This friend is also not married and doesn’t have children but she is able to work and take care of her home and herself and leave her home when she wanted and so on….. This was someone that I really trusted and had felt very close to and loved very much. Two years went by before I even felt comfortable to contact that friend and when I did, I told her how I felt, they said nothing, there was silence on the other end of the phone, so I didn’t contact them for another almost year. I have been so desperate to have friendship in my life that I contacted that person again and told them that I just wanted to get past how I felt, this is one of the friends that I spent time with that I talk about at the top of this post, and still that person has yet to apologize to me for what was said and they knew how much they had hurt me. I guess that is just another downfall of having EDS along with all of it’s attacks on my body, that you get so desperate for human contact that isn’t from a nurse or a doctor that you sacrifice yourself to the alter of “this is going to cause you to feel more sick” and look how desperate I am. Never in my life have I been one to hold a grudge and I hope that I never become that person who does, but this just about takes the cake for me. It’s kinda like taking medicine, is the side effects worse that the pain to start with?
http://genesthatdontfit.blogspot.com/…/being-overwhelmed-to…

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Blessed are the flexible for they shall not be
Bent out of shape.

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Posted: 12 March 2015 10:08 AM   [ Ignore ]   [ # 1 ]  
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Thanks for sharing this, Amy! Yes, I betcha’ most of us can relate, sadly. It is hard when we lose friends—and even family members who just can’t relate or get tired of hearing about our struggles. I put myself in their place and understand (I think I would tire of it, too, if I was healthy). This is one reason I started the forum, in fact. We can, at least, understand each other to some degree, right? Thank you for expressing what so many of us live with every day. wink

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Dr.Diana, therapeutic optometrist disabled by EDS/POTS/ME/CFS for a decade, now recovered and practicing full-time at POTS Care cheese

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Posted: 12 March 2015 09:38 PM   [ Ignore ]   [ # 2 ]  
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Thanks Dr. Diana!

I’m am glad we have a place to share with each other.

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Blessed are the flexible for they shall not be
Bent out of shape.

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