Need doctor that recognizes ED Hypermobility Type in Louisiana that may prescribe Diamox. Most doctor say that I don’t have ED because I do not have stretchy skin.
I know I have ED Hypermobility Type along with POTS & Gastroparesis which all started 10 years ago at age 13. As of this week my little brother (Age 13 today) had his 1st vision loss (total blindness for almost an hour). Poor man’s tilt test showed POTS and he also has the hypermobile joints.
We need a doctor (even if have to travel) that recognizes ED HT and POTS