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Sunday Night is Rib Night in Ehlers Danlos Syndrome Land
Posted: 26 July 2015 10:05 PM   [ Ignore ]  
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How many of you have rib issues? Here is a short youtube video on how my ribs are faring lately:

Rib Cage Issues in Ehlers Danlos Syndrome Hypermobility Type

Anyone else have similar symptoms? Share you stories here.

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Posted: 27 July 2015 10:48 AM   [ Ignore ]   [ # 1 ]  
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Truth be told, I am not just winging it in my attempts to improve the state of affairs in my ribs. I recently consulted with Jerry Hesch, a highly knowledgeable and competent physical therapist located in Aurora, Colorado. I look forward to sharing the results of my experiments in the coming weeks.

Jerry has also been a remarkable source of input in my efforts to stabilize an unstable pubic joint that resulted from a pelvic injury during childbirth over 25 years ago. Yes, I have endured pain this many years because I long ago gave up on the idea of getting any help from a doctor. I am sure many of you can relate to this state of learned helplessness that is common after uncommon EDS-related injuries.

Jerry is the first person I have met who has been able to help me drag myself out of the pit of “what’s the point.” After getting an assessment and treatment plan from Jerry a couple of weeks ago, I am now both curious and hopeful that I can improve the quality of my physical health even if I can’t eliminate the underlying disorder.

I am happy to report that I am making noticeable progress as of week three. I’ll post more about the details after a few more weeks of applying an SI belt at the level of the pubic joint. I’m also looking forward to sharing the results of my rib experiments.

MTD

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