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Weird changes in my nails
Posted: 31 July 2011 05:46 PM   [ Ignore ]   [ # 16 ]  
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My nails look like that too. I don’t have any of the problems they listed but there is something going on with my liver since I have had repeated high bilirubin levels.

I was wondering too about something else with my nails. There are no moons on any of the nails except the thumb and there it is just a sliver.  I know the thumb should be about 20% of the pink, the index finger should be about 15%, middle finger should be 10% and ring finger should be about 5%.

I am thinking that it may be my tendency toward anemia or a lack of oxygen. With my tachycardia it wouldn’t seem like oxygen would be a problem. It seems to me it is likely an EDS or mast cell problem. I have Raynaud’s but that isn’t much of a problem this time of year. Blood pooling in my extremities is more of a problem right now so that seems like it would help get oxygen to my fingers. I have considered putting a few drops of food grade peroxide in a drink each day to see if it would help but I can’t stand the taste of it even if everyone says it has no taste. raspberry

As far as I know I do not have any lung problems or kidney problems. I saw them online as possibilities. I did get a bad UTI that may have damaged my kidneys about 8 yrs ago. Ever since then, if I get a fever for any reason, my kidneys ache.  The only other thing related to that is that I tend toward a high morning urine pH. That is a little unusual too.

Thank you,
Deborah

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Posted: 02 August 2011 12:50 PM   [ Ignore ]   [ # 17 ]  
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Hi all… backing up a bit… Dr D… I started with my PCP re my nails. He said he knew something about fungus, but I needed to see a Dermatologist.

Do any of you have problems with liver functioning/ cholesterol? Unfortunately Mast Cell Diseases can have a negative impact on our liver. My Cholesterol is screwed up… low HDL and high Triglycerides. Tryptase breaks down HDL before it can do its job of helping to clear stuff out. And it seems poor liver functioning is implicated in some of these nail problems.

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Gail
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Posted: 08 August 2011 04:53 AM   [ Ignore ]   [ # 18 ]  
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Hi all. I have really heavy thickening and curving of thumb and index nails. They also have horizontal ridges and I try to file them down but it keeps returning! Also get splinter looking things under my nails too.

Hope I can post this useful link…. http://mrishaanshareef.blogspot.com/2008/10/finger-nails-to-predict-health.html

Lots of good pics and info on there. Lou 8o)

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Posted: 21 August 2011 12:20 AM   [ Ignore ]   [ # 19 ]  
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MGC - 02 August 2011 12:50 PM

Hi all… backing up a bit… Dr D… I started with my PCP re my nails. He said he knew something about fungus, but I needed to see a Dermatologist.

Do any of you have problems with liver functioning/ cholesterol? Unfortunately Mast Cell Diseases can have a negative impact on our liver. My Cholesterol is screwed up… low HDL and high Triglycerides. Tryptase breaks down HDL before it can do its job of helping to clear stuff out. And it seems poor liver functioning is implicated in some of these nail problems.

I think this is very important—thanks for posting! I need to have my cholesterol checked, but meanwhile, many of us DO have issues with bad cholesterol, and many of us have “weird livers”. I hear a lot about liver fibrosis even in patients who never drink alcohol. This is a great point. Thank you for posting! smile

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Posted: 21 September 2011 08:44 PM   [ Ignore ]   [ # 20 ]  
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i heard that you can get a lot of ridging if you are a smoker due to lowered blood oxygen levels. i dont smoke and have a few on my thumb nails, but they’re notoriously bad for their oxygen perfusion, have a lot of problems with it at the moment!


i also get massive horizontal ridges on my toe nails due to nutrient deficiencies (get them when i cant eat for a few days/weeks) and eventually when the ridge reaches halfway along my toes (from bed to tip) the nail snaps off. happened so often since i was a kid that i’ve lost count. i can use the ridges like a medical diary to tell me roughly how long ago my tum last went on strike, its actually very useful!. as i dont have many vertical ridges i’m not sure those are related to nutrient deficiencies….. but other changes (like flaking, spotting etc ) are likely to be nutritional…..

although i could be talking (writing?) rubbish as it’s nearly 3 am and i should have gone to bed hours ago but got sucked into this new (to me) forum. told myself to look at it in the morning but just couldnt wait!

 

fi xx

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Posted: 21 September 2011 11:08 PM   [ Ignore ]   [ # 21 ]  
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fiona-jane - 21 September 2011 08:44 PM

i heard that you can get a lot of ridging if you are a smoker due to lowered blood oxygen levels. i dont smoke and have a few on my thumb nails, but they’re notoriously bad for their oxygen perfusion, have a lot of problems with it at the moment!

i also get massive horizontal ridges on my toe nails due to nutrient deficiencies (get them when i cant eat for a few days/weeks) and eventually when the ridge reaches halfway along my toes (from bed to tip) the nail snaps off. happened so often since i was a kid that i’ve lost count. i can use the ridges like a medical diary to tell me roughly how long ago my tum last went on strike, its actually very useful!. as i dont have many vertical ridges i’m not sure those are related to nutrient deficiencies….. but other changes (like flaking, spotting etc ) are likely to be nutritional…..

although i could be talking (writing?) rubbish as it’s nearly 3 am and i should have gone to bed hours ago but got sucked into this new (to me) forum. told myself to look at it in the morning but just couldnt wait!
fi xx

Hi fi! So glad you jumped on! My mom smokes just a little and has longitudinal ridging, but I don’t smoke. I DO, however have a BIG lack of oxygen perfusion, so that makes sense. Thanks for your help, fi!
Are you taking any mast cell treatment for that tummy? (something like Zantac and Zyrtec, double doses? Just curious…  Big hug…

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Posted: 24 September 2011 04:03 PM   [ Ignore ]   [ # 22 ]  
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mother1991 - 22 July 2011 07:12 PM

the only problem is I am severely allergic to sulfa drugs and with this med (diamox) from what i read would not be really able to take.

Hi again, I wonder if you wouldn’t be OK with cromolyn sodium—it’s a mast cell stabilizer? It is about as inert drug as you’ll ever find! You won’t notice a difference for a month or even two, but then—wow, what a difference. It won’t “kill” the mast cells you have now, but it should allow some of them to come to their timely deaths, and the new ones will be better behaved. If you can’t tolerate Zyrtec, after you have cromolyn sodium, you will likely be able to tolerate more drugs easier—perhaps Xantac at that point? Neptazane (instead of Diamox) has to still be watched carefully with you and your doctor because it is still a sulpha derivative. Rats. But again, seeing a specialist about cromolyn sodium I think would be a SMART move! Will you let us know? Thanks so much and HANG IN! smile

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Posted: 27 September 2011 12:08 AM   [ Ignore ]   [ # 23 ]  
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My nails look like possibly a combo of Terry’s Nails and Red Lunula.

I have the dark pink strip at the distal end of my nail and I have NO lunula on any of my fingers. I have small ones on my thumbs. But as it says that Red Lunula is associated with collagen vascular diseases and I am a VEDSer, that makes sense.

Marie

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Posted: 27 September 2011 01:50 PM   [ Ignore ]   [ # 24 ]  
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i have double white stripes(guess kinda like mee’s) and red lunulas on both thumbs, also all nails are rippled when they grow

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Posted: 10 October 2011 06:44 AM   [ Ignore ]   [ # 25 ]  
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thank you for the nail link!

I have the longitudinal ridges (but they came on and get worse ‘slowly’ over the years, so I guess… the age thing… ; )))) - and luckily I dont have the terry’s redness)- and yes… oops I am a smoker… but my mum who’s never smoked in her life… also has them
my nails actually grow v fast, but are v weak (but I’ve always been a nail biter- though always a ‘bite hem as short as you would cut them”- NOT damagingly short)
and like deb, I have no moons (apart from on thumbs) either

and in the last year or so I’m also getting pitting on several nails… but then… I obviously do have a connective tissue disorder ; ) and I have also had a bout of alopecia areata (brought on as far as I could tell by a 3 week bout of too much physical and mental stress)

and yes, I also have high cholesterol despite NOT having a high cholesterol diet…

me thinks I really ought to try anti histamines…
(might maybe at least ‘cure’ me of my seemingly-allergic-to- sudden- temperature- drop sneezing fits and 10mins of ‘having a cold’ symptoms)
xxg

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Posted: 10 October 2011 02:12 PM   [ Ignore ]   [ # 26 ]  
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bearcat - 10 October 2011 06:44 AM

thank you for the nail link!

and yes, I also have high cholesterol despite NOT having a high cholesterol diet…

me thinks I really ought to try anti histamines…
(might maybe at least ‘cure’ me of my seemingly-allergic-to- sudden- temperature- drop sneezing fits and 10mins of ‘having a cold’ symptoms)
xxg

Bearcat… my husband, who will eat every high fat, sugar loaded food he can find, has very good cholesterol levels. I, on the other hand, just do not tolerate these foods well and have the Cholesterol problem.  uuggghhh!!

Do try the antihistamines. That is where I started. At one time, I could tolerate only a very narrow range of temperature. Too cold or too hot made me symptomatic. Much better now!

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Posted: 24 October 2011 03:40 PM   [ Ignore ]   [ # 27 ]  
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Deb - 31 July 2011 05:46 PM

My nails look like that too. I don’t have any of the problems they listed but there is something going on with my liver since I have had repeated high bilirubin levels.

I was wondering too about something else with my nails. There are no moons on any of the nails except the thumb and there it is just a sliver.  I know the thumb should be about 20% of the pink, the index finger should be about 15%, middle finger should be 10% and ring finger should be about 5%.

I am thinking that it may be my tendency toward anemia or a lack of oxygen. With my tachycardia it wouldn’t seem like oxygen would be a problem. It seems to me it is likely an EDS or mast cell problem. I have Raynaud’s but that isn’t much of a problem this time of year. Blood pooling in my extremities is more of a problem right now so that seems like it would help get oxygen to my fingers. I have considered putting a few drops of food grade peroxide in a drink each day to see if it would help but I can’t stand the taste of it even if everyone says it has no taste. raspberry

As far as I know I do not have any lung problems or kidney problems. I saw them online as possibilities. I did get a bad UTI that may have damaged my kidneys about 8 yrs ago. Ever since then, if I get a fever for any reason, my kidneys ache.  The only other thing related to that is that I tend toward a high morning urine pH. That is a little unusual too.

Thank you,
Deborah

Hi Deborah—high bilirubin—did your doctor rule out hemolytic anemia (the blood cells break, and can be viewed on a slide under the microscope). I wouldn’t let them ignore that!

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Posted: 24 October 2011 03:44 PM   [ Ignore ]   [ # 28 ]  
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MGC - 02 August 2011 12:50 PM

Hi all… backing up a bit… Dr D… I started with my PCP re my nails. He said he knew something about fungus, but I needed to see a Dermatologist.

Do any of you have problems with liver functioning/ cholesterol? Unfortunately Mast Cell Diseases can have a negative impact on our liver. My Cholesterol is screwed up… low HDL and high Triglycerides. Tryptase breaks down HDL before it can do its job of helping to clear stuff out. And it seems poor liver functioning is implicated in some of these nail problems.

Hi again, Honestly, it doesn’t sound like nail fungus to me. But that is worth about what you paid for it! Cholesterol—you are SO right. I’ve always had bragable cholesterol levels. Not anymore! It’s high now, as is true with most of us with mast cell issues (even teens). I’ll be eager to see if mast cell treatment brings it back down. Liver function can be affected by mast cells, and can cause liver cysts and liver enzymes to go nuts (and cause liver enlargement). How are you doing with that?
Gentle hugs, smile Diana

 

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Posted: 24 October 2011 07:25 PM   [ Ignore ]   [ # 29 ]  
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Hi Deborah—high bilirubin—did your doctor rule out hemolytic anemia (the blood cells break, and can be viewed on a slide under the microscope). I wouldn’t let them ignore that!

So is this a special test they don’t usually do? My RBC comes back normal now that I have been taking an herbal iron supplement.
I was originally tested 2 yrs ago after a car accident when my neck just would not got well. I got an MRI and the person that reads it noted soft bone marrow. So the doctor got me to get a CBC. It came back low. I tried iron and my blood pooling got really bad. My legs felt like they had real iron in them - maybe 50 lbs worth! So then I tried herbal iron and had no problem. I’ve had my blood checked a few times since then and it has been ok but my bilirubin was still just a little too high.

 

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Posted: 28 October 2011 02:35 AM   [ Ignore ]   [ # 30 ]  
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I’m a non-smoker and I have ridges on my nails. I’m celiac (negative blood test but diagnosed through diet). My intestinal issues (bloating, episodic pain, constipation) resolved on the SCD diet. The pads of the tips of my fingers, toes and my BUTT had flattened from being an undiagnosed celiac for so many years. After improving my gut flora on the SCD, I started absorbing nutrients better and the pads of my fingers, toes AND my butt have returned to normal. I was also obese before the diet and had crazy carb cravings. The diet helps normalize your weight because it heals your intestines so you absorb nutrients better and it helps you to have a normal appetite. Those who are underweight gain, those over tend to lose. (Unless you eat too many nuts!) Alas, the diet didn’t seem to help my horizontal fingernail ridges at all, so for me I think it is being caused by something more than just malabsorption.

BTW, if you have really bad brain fog and and IBS symptoms try the SCD diet for a month. I was shocked how my brain fog dramatically lifted after four days on the diet. Keep it low histamine though, I learned that the hard way.

My best, SweetFeather

 

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