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I’m so lost
Posted: 08 December 2015 06:30 PM   [ Ignore ]  
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Pots syndrome what the heck is causing it. I ask myself this question everyday why does my heart race upon standing? This all started 5 months ago and before that I was fine.
I really feel like I’m in a bad dream. Actually I feel like I’m in the twilight zone.
I just keep hearing about blood pooling in the legs and the abdomen causing my heart to race. Is that really happening in my body? How do I know if that is going on? There are so many questions that I have I need to know the answers to in order to fix this. And I really believe the only way it will be fixed is going to pots care.
I want my life back so desperately. I can’t stand suffering everyday with these symptoms.
I just started the parasym plus and pray to God it works to help with these agonizing symptoms.
Frustrated and sad

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Posted: 11 December 2015 03:58 PM   [ Ignore ]   [ # 1 ]  
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Hi Bugby, Most of us start with a tilt table test, and cardiologists will usually rule out structural heart problems first. If blood is pooling in your legs, surgical stockings can help (although they never help me, honestly) and if blood is pooling in your abdomen, an abdominal binder can help (that did help me). Although “band-aids”, these can help while you and your doctors are trying to locate the cause. Do you have a copy of The Driscoll Theory? That may also help you at this early stage. (((hug)))

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Dr.Diana, therapeutic optometrist disabled by EDS/POTS/ME/CFS for a decade, now recovered and practicing full-time at POTS Care cheese

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Posted: 12 December 2015 11:54 AM   [ Ignore ]   [ # 2 ]  
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Hi dr. Diana. Thank you so much for your reply. I had a tilt table test done and just got the results yesterday. Before the tilt table test I had two echocardiograms which showed a normal heart with no diseases. And several EKGs that were all normal as well. I have to say the tilt table test report is very confusing for me. The diagnosis says syncope. I have not fainted since this whole thing started. When I was in the laying down position it revealed normal sinus rhythm with a heart rate of 75 beats per minute. With no other abnormalities noted.
Evaluation of parasympathetic autonomic function was performed by measuring heart rate variability during paced breathing.  heart rate variability during of Valsalva maneuver and heart rate variability autonomic function and assessment for orthostatic hypertension was performed by measuring the beat to beat blood pressure response during a Valsalva maneuver in the beat to beat blood pressure response during a five minute passive upright tilt. Measures of heart rate variability with deep respiration test of cardiac vagal function where in the normal range. There was a normal heart rate response to a Valsalva maneuver the blood pressure sympathetic vasomotor response and phase 2 of the Valsalva maneuver was normal.. there was an exaggerated postural tachycardia on active standing the highest recorded heart rate was 148 beats per minute from a baseline of 91 after 5 minutes of standing. The patient reported palpitations and pressure in the head. There was a transient blood pressure fall with a recovery on active standing. The lowest recorded blood pressure was 81/39. From a baseline of 104 over 57 after two minutes of standing. There was a normal hemodynamic response during the first 5 minutes of passive tilt. It says measures of parasympathetic and sympathetic adrenergic and sympathetic cholinergic function are in the normal range. This is the part I don’t get it. Postural tachycardia as seen on the active standing in tilt table test is a nonspecific finding. And exaggerated postural tachycardia has been associated with a mild or early autonomic neuropathy. Neuropathy that involves the distal vasculature sparing the cardiac intervation, cardiovascular deconditioning, cardiac beta adrenoreceptor supersensitivity, mitral valve prolapse, fever, and volume depletion. We have also seen this response in patients diagnosed with chronic fatigue syndrome. Postural tachycardia maybe a provocative factor for neural ii-mediated syncope. Although syncope was not seen in the study clinical correlation is required.

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Posted: 13 December 2015 03:27 PM   [ Ignore ]   [ # 3 ]  
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Although I can’t be certain (your doctor is the one to ask, certainly), it sounds like you fit the “idiopathic POTS” category. They are not ruling out early neurologic causes, but it looks doubtful because the tests are negative. I remember at Mayo, my result said that ‘all autonomic testing, except for the tilt table test is normal.‘You may be caught in that black hole that we were in—no one really understood what was going on. :( Please tell me you have a copy of The Driscoll Theory? It’s written just for us!

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Dr.Diana, therapeutic optometrist disabled by EDS/POTS/ME/CFS for a decade, now recovered and practicing full-time at POTS Care cheese

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Posted: 13 December 2015 04:17 PM   [ Ignore ]   [ # 4 ]  
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First of all I can’t thank you enough for taking the time to reply to my posts it means a lot to me. I so badly want to get to pots care. I am going to try my hardest to get there most definitely. And I am going to be ordering the Driscoll theory right away.
I’m so desperately wanting to get my life back to where it was and stop this madness. I cry everyday about it. I’ve been on the parasym plus less than a week and so far I’m just taking one pill a day to see how things go. I can’t stand taking the beta-blocker propranolol. I’m so hoping that the parasym plus slows my heart rate down. I’m probably not taking enough?

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Posted: 13 December 2015 04:37 PM   [ Ignore ]   [ # 5 ]  
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the way Parasym Plus works is if you take 2-3 capsules at once (preferably on an empty stomach—I would try first thing in the morning), the body puts it together quickly and it stimulates the (postganglionic) vagus nerve, stimulating normal movement of stool and digestion (in addition to calming the heart, encouraging proper breathing—all functions of the vagus nerve. It also crosses the blood-brain barrier and boosts brain levels of acetylcholine (needed for cognition and memories). So, yea, I think you’re right—it’s likely not enough to do much! wink

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Dr.Diana, therapeutic optometrist disabled by EDS/POTS/ME/CFS for a decade, now recovered and practicing full-time at POTS Care cheese

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Posted: 13 December 2015 05:37 PM   [ Ignore ]   [ # 6 ]  
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Ok, starting tomorrow I will take the new dosage. And I am also ordering the Driscoll theory.smile
So far my bowel movements have been really good healthy and normal as well as my digestion. As for the last 2 weeks I’ve been feeling like I have to keep taking that extra deep breath in almost like I’m hyperventilating and my heart rate kind of all over the place.
The lightheadedness and dizziness is what really upsets me the most. It makes it so terribly difficult to stand for any length of time. Even laying down in bed I still feel Yucky unwell. Just like you said in one of your videos regarding that topic.

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Posted: 27 December 2015 09:21 AM   [ Ignore ]   [ # 7 ]  
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I so desperately want to go to your center potscare.
My Dr that I have had for years has totally discarded me because he doesn’t believe me. My last appointment with him was awful. He made me feel so bad. Even after reading my tilt table test report.
He was very cold and down right disrespectful. I left there crying and more lost than ever. :(

I’m so tired of going through this every day with all the symptoms and using bandaids to cover them up and even that is not helping.
I truly don’t know why or how this developed and bang my head against the wall trying to figure out what it is.
Dr Driscoll I have got to get to you and your team.
Dr after dr. and no relief.
The dizziness is like torture.
Scared and sad…
I’m going to order the Driscoll theory tomorrow
Ps does antihistamines interact with propranolol?

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Posted: 28 December 2015 03:21 PM   [ Ignore ]   [ # 8 ]  
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I bought Zantac and zyrtek today. What is the best way to get started using these.?

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Posted: 02 January 2016 07:49 AM   [ Ignore ]   [ # 9 ]  
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