Do many of you have these eye disorders? I also had Superior Limbic Keratoconjunctivitis (SLK) for years, which I think the dry set me up for and maybe the thyroid issues, though my hypothyroid had been testing as “normal range” for about 12 years prior to SLK. And my hyperthyroid/nodules didn’t start until 10 years after SLK started.
It’s been an enormous battle getting my eye problems under control at all this year due to Doctor’s having trouble figuring out the cause of all the inflammation and filaments, then allergy to glaucoma drops for both treatment and testing has been a huge problem. Finally got the dry eye much better with fish & flax oil (Barlean’s Omega Swirl), humidifier, OASIS lubricating drops, nighttime lubricating ointment and allergen avoidance (after skin patch tests).
But I’m still on glaucoma drops that contain BAK, which I’m a bit allergic to. And the doc can’t figure out how to test my pressure without Flourescein, which they think I’m allergic to (but I wonder if there is BAK in those yellow drops they use & that’s the real problem). Went off Xalatan due to the BAK allergy. Tried Allergan-P which caused my pressure to go back up too high. Now I’m on Combigan which works on pressure but irritates (BAK) because the current doctor doesn’t believe BAK is the real problem. Any suggestions for testing or treatment for Glaucoma?
My undiagnosed underlying condition is still a mystery, but is suspected of being “something similar to EDS” and something that makes me develop allergies or sensitivites to LOTS of things. Have also had periods of problems with many forms of autonomic dysfunctions and near-syncope episodes (up to about 30 times per day). Currently my biggest systemic-type labels are Fibromyalgia and Erythromelalgia.