Hi, this is my first post, not totally sure if I’m in the right section… (: So I’ll introduce myself, my name is Emy I’m almost 21 and I’ve been sick for 7 or so years, POTS, EDS, neuropathy, AAG, you know the drill, I won’t go into it all.
So I wanted to start a discussion about this because I hardly ever see anyone talking about it, especially in a more professional setting, but whenever I do bring it up to other spoonies everyone agrees and has their own experiences to share. I have developed HORRIBLE anxiety due to my illnesses and just being sick in general. As an example, it took me almost an hour to get into my bed the other night because I was having full blown panic attacks over the physical action of GETTING INTO BED. That’s just one example and I don’t have the spoons to go into it all right now, but I just want to know if anyone else has experiences like this? To add onto my bed thing,I feel like I spend so much time in there feeling awful and have had, honestly, completely traumatizing experiences in there (I don’t think there’s any way for being unable to sleep because you’re at a 9 on the pain scale and feeling so immensely sick you honestly think you’re going to die can NOT have some type of mental repercussion) that I have a ton of bad feelings attached to it. I deal with anxiety about leaving the house, going certain places, showering, all kinds of normal life stuff, and it all always comes back to my disability and my body. Also, a lot of anxiety about doctors and feeling like a science experiment all the time, always putting creams on and taking pills and my entire life revolves around my body, and I don’t have much of a say. I would LOVE to see a doctor talk about this or honestly anyone talk about it, anyone?