I present as Hyper mobile EDS, and my rheumatologist agrees I’m hyper mobile, but refuses to entertain or investigate an official diagnosis of EDS. I’ve asked for genetic testing and was told to “go for it.”
Can anyone suggest a resource in Western Washington State, preferably in the Olympia area, or at minimum along the I-5 corridor? I’m not only asking for myself, but for my son, who presents far worse, and suffers more pain than I did at his age. Thank you.