My son is 17, recently diagnosed with POTS by his pediatric neurologist. He has been suffering from constant headache, neck pain, lower back pain, and when episodes strike (about every 3-4 hours while awake) he feels numbness or tingling in his legs, nausea, extreme pain in his head, and has to immediately lie down to restore blood flow to his head. The first event was aboard an aircraft and he went completely white and his lips turned blue before he completely passed out in a seated position. Since then, his symptoms have persisted and are the same each time.
He had his BP measured lying, sitting, standing, then transitioning between those positions repeatedly after 15 minutes of rest intervals between. His BP does not remain steady and actually declines somewhat when moving to a standing position. It drops approximately 10 points systolic and diastolic. His episodes, however, can even happen when lying down but awake. Only in his sleep do they not occur.
He has had clear X-Rays, CT scan, MRI of his brain, and blood work. They did not measure vitamin levels, which I will request at our next appointment. He is basically unable to leave the house and confines himself to his bedroom most of the time. He is being taught at home by a county program since he graduates this year. He was to attend college, but may have to go online instead.
What dosage should someone who has his symptoms begin with and take each day? The bottle of Parasym Plus states 2-3 per day, but when beginning the supplements I’m not sure if he needs higher doses, nor do I know how to spread them out. Any help or suggestion is appreciated.
By the way, his neurologist is highly supportive of us trying to Parasym Plus and other things before medication. She had him on Nortriptyline and he had horrible side effects (thoughts of suicide), which are now gone since we stopped the meds. She’s not a fan of medication and encourages us to try more natural products first. He’s on heavy fluids of about 1.5 gallons per day water and Gatorade, no caffeine, no sugary drinks besides the Gatorade. He’s eating a lot of vegetables and eggs (for choline).