Can anybody using Diamox or Topiramate with success give me some advice?
I’m right where I was several months ago feeling like my head is going to explode, and wishing I’d kept the batch of Diamox (acetazolamide here in the UK) that I ordered to try initially.
I’m not normally a quitter but it gave me some pretty unpleasant side effects when I first tried it. For my first few doses I quartered a 250mg tablet. I have severe orthostatic intolerance and was worried about the diuretic effect making this worse. I didn’t notice that much difference in either headache or POTS, but did get what I felt was a rebound headache worsening when it wore off.
A couple of weeks later I was really desperate so I took a whole pill - this gave me numbness and pins and needles in my hands feet and face - like a stroke but it affected both sides. After that scare I got rid of the rest down the safety disposal at work.
Now I think I was hasty. Did I give it a proper try and simply couldn’t tolerate it? If I had some left I’d try it again now. It couldn’t have been that my bicarb dropped as I wasn’t on it for more than a day or two.
I’m now thinking of ordering some Topiramate which I understand to be a milder alternative. I have no help from the NHS so buy my meds online. I did get an MRI scan (lying down) 2 weeks ago and have not had the result yet - I assume if I had a brain tumour or other nasty I would have been called straight away so taking this as a good sign
Has anyone used this and did it help? How long do you need to stick at it to see any benefit and for the side effects to go away?
I’d love to hear any experiences positive or negative.