Hereditary Macular Degeneration and EDS III
Posted: 16 May 2012 04:09 AM   [ Ignore ]  
Total Posts:  19
Joined  2011-06-24

Wondering if any genetic link has been found with early onset hereditary macular degeneration and EDS III.
I have 6 generations of EDS. 2 siblings in one generation have Early onset (in their 20’s) hereditary macular degeneration.

The “fundus” study got me thinking about this interesting puzzle.

Posted: 17 May 2012 09:54 PM   [ Ignore ]   [ # 1 ]  
Sr. Member
Total Posts:  734
Joined  2012-04-17

I’d be interested in this too, as all 3 of my fathers siblings have gone blind to some degree, so there’s an eye weakness that seems to run on his side of the family. I know for sure that one of them had Macular Degeneration.
Head & Neck Injury 2002, POTS, EDS, CCI (with PG & CS), WAD, Empty Sella, Peripheral Vestibular Dysfunction, Mild Radiculopathy & small fibre neuropathy (right leg & foot resp.)

Posted: 19 May 2012 01:07 PM   [ Ignore ]   [ # 2 ]  
Total Posts:  150
Joined  2011-06-18

Not sure. Not always lots of research about EDS, but I wouldn’t be surprised. Our eyes are connective tissue mostly.


It’s good to be open minded, but not so open minded that your brain falls out of your head.

“Patients can have as many diseases as they damn well please”.

Posted: 11 June 2012 03:38 AM   [ Ignore ]   [ # 3 ]  
Total Posts:  11
Joined  2012-05-18

That is very interesting stuff about question with Hereditary Macular Degeneration. I have always found it weird how I have inheredited Macular Degeneration in one of my eyes which they found when I was 20 years old.

I have had to wear hard contact lenses since I was 14 or 15 years old. My eye doctor has tried to get me into soft contact lenses at 3 different times in my life and for some reason every attempt has failed. I’m the only person in my family of 4 who has to wear hard contacts, everyone else can wear soft ones for some reason.

If you find out any connection between Macular Degeneration and EDS please let me know.