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Hereditary Macular Degeneration and EDS III
Posted: 16 May 2012 04:09 AM   [ Ignore ]  
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Wondering if any genetic link has been found with early onset hereditary macular degeneration and EDS III.
I have 6 generations of EDS. 2 siblings in one generation have Early onset (in their 20’s) hereditary macular degeneration.

The “fundus” study got me thinking about this ...an interesting puzzle.

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Posted: 17 May 2012 09:54 PM   [ Ignore ]   [ # 1 ]  
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Hi
I’d be interested in this too, as all 3 of my fathers siblings have gone blind to some degree, so there’s an eye weakness that seems to run on his side of the family. I know for sure that one of them had Macular Degeneration.
Barbara
(UK)
Head & Neck Injury 2002, POTS, EDS, CCI (with PG & CS), WAD, Empty Sella, Peripheral Vestibular Dysfunction, Mild Radiculopathy & small fibre neuropathy (right leg & foot resp.)

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Posted: 19 May 2012 01:07 PM   [ Ignore ]   [ # 2 ]  
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Not sure. Not always lots of research about EDS, but I wouldn’t be surprised. Our eyes are connective tissue mostly.

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It’s good to be open minded, but not so open minded that your brain falls out of your head.

“Patients can have as many diseases as they damn well please”.

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Posted: 11 June 2012 03:38 AM   [ Ignore ]   [ # 3 ]  
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That is very interesting stuff about question with Hereditary Macular Degeneration. I have always found it weird how I have inheredited Macular Degeneration in one of my eyes which they found when I was 20 years old.

I have had to wear hard contact lenses since I was 14 or 15 years old. My eye doctor has tried to get me into soft contact lenses at 3 different times in my life and for some reason every attempt has failed. I’m the only person in my family of 4 who has to wear hard contacts, everyone else can wear soft ones for some reason.

If you find out any connection between Macular Degeneration and EDS please let me know.

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