Hello, new friend! I just wanted to mention that Zonisamide is generally prescribed for seizures. Are you having true seizures? At POTS Care, we see quite a few folks presenting *similar to*
seizures, but these are not “true” seizures, and need to be addressed differently. Gentle hugs…
I’m new, and I’m very confused about all of these conditions related to cerebral compression. I have POTS but I do not have any of the CSF leaks, or pressure symptoms - no headaches, no dripping fluid - nothing that I can observe actually. My POTS developed after a sinus turbinate surgery and greatly worsened in grad school almost 18 years later. I have since had ACell/PRP treatments to heal the turbinate nerves and they helped me emerge from serious illness - was bedridden, suffocation, severe POTS. My main symptoms now are breathing difficulties - the bronchioles actually feel sore when I breathe, exercise intolerance, temp dysregulation and brain fog. The breathing is what bothers me most though. I don’t feel like I am a candidate for Diamox or even Parasym plus. Really lost. Any suggestions?