Has anyone had an upright MRI to look for Chiari/brainstem compression?
I had an MRI lying flat, which was normal, however my symptoms of severe POTS, presyncope, high BP, headaches and nausea are absent when lying down.
I and other family members have features of EDS (although no formal diagnosis) and I believe such abnormalities will sometimes only show up when gravity is in effect ie in the upright position.
I will have to pay privately for this scan in the UK which is over £1000.
I would love to hear experiences and opinions from anyone who has had, or is considering upright imaging? Did it help you & show anything that was not obvious lying flat?