Stryder had his appointment with Shriners on Tuesday. The Dr. was concerned about his looseness and wants to see him every 6 months now, instead of just yearly. He also is talking with the geneticist about EDS types because he is showing worse symptoms and looseness than he did last visit AND he is so strange feeling. They took Xrays of his neck and he said that he had a gap somewhere and he wants the geneticist to look at it. He said that it is not a big problem with most children but it might be with an EDS child.
They looked at his chest too, and I was hoping they would have said something like he would grow out of it, but they didn’t. It’s very soft in the middle too. We go back on the 25th to see the thoracic specialist there for treatment or surgery. I’m trying not to be worried about it, but they didn’t help reassure me with anything so I can’t help it.
He is also dragging his feet when he walks :( There is nothing we can do about any of it, he said. But we should see an EDS specialist. Stryder has an appointment with Dr. Francamono on October 31.