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High altitude and diamox
Posted: 04 February 2018 05:10 PM   [ Ignore ]  
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Recently I moved from 400 feet above sea level to over 4100 feet above sea level. I wasn’t sure how to adjust my diamox and have actually found my high intracranial pressure much better. Has anyone else found relief at high altitudes?

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Posted: 21 February 2018 09:19 AM   [ Ignore ]   [ # 1 ]  
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YES! I often hear from patients that when they go on vacation at a high altitude they feel better (as do I). It also explains why so many of us CRASH and burn when the barometric pressure drops!!
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Dr.Diana, therapeutic optometrist disabled by EDS/POTS/ME/CFS for a decade, now recovered and practicing full-time at POTS Care cheese

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Posted: 21 February 2018 01:44 PM   [ Ignore ]   [ # 2 ]  
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Dr. Diana,
Do you still deal with intracranial pressure? I thought I read that you were on it for 2 years and then were able to come off? Or do some people have to be on it the rest of their lives?

Thanks for any input.

Terriann

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Posted: 25 February 2018 09:40 PM   [ Ignore ]   [ # 3 ]  
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I do better at around 2000 ft elevation. Not so good at sea level and I can’t go above 5000 ft without needing a trip to the ER. At higher than 6000 ft I can hear my skull crackling and I go pins and needles in all of my extremeties. It’s awful.

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Posted: 12 April 2018 10:28 PM   [ Ignore ]   [ # 4 ]  
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Barometric pressure tonight is 991. Ouch. Even my eyeballs hurt. Is this when I should take additional Diamox to compensate?

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