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I need more resources regarding neurological vision issues
Posted: 12 March 2018 08:35 PM   [ Ignore ]  
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I have hEDS and some of my visual problems are not on the lists I have seen, even by a professor who has seen multiple EDS patients. I don’t want to get into symptoms here.

I need to learn more about problems that are less common. I’m also looking for info to bring to new doctor(s).

If anyone knows of other groups, boards, sites with good info, please PM or reply. Or journal articles, books, personal experiences. Thanks!

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I have hEDS, Dysautonomia, mast cell disease. Probable mito, etc. Looking to make friends on a similar journey.

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Posted: 17 May 2018 06:02 AM   [ Ignore ]   [ # 1 ]  
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You have posted something after such a long time.Glad an essayroo legit redirected me to your blog or else i would have had missed out on this post.

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