Hi all, I am 27 and have the EDS, MCAS, POTS trio. Getting much worse the past 2 years or so. I am relatively new to learning about the Driscoll Theory but am amazed at how it lines up with so many of my symptoms and health issues. I have two questions:
1) I’ve seen a few places online people mention that not everyone takes Diamox long term. How do you know when to stop Diamox? (I haven’t tried yet, but plan to speak with my doctor about it). Why would the ICP issue go away if it’s caused by EDS?
2) I am very eager to start Parasym Plus (LOTS of GI issues and so many low acetylcholine symptoms). Do you take Parasym Plus in place of Diamox or in addition to it? Are they addressing completely different problems, or does raising acetylcholine somehow affect ICP?
Thanks so much!!