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Favorite Driscoll Theory quote
Posted: 05 July 2018 11:09 AM   [ Ignore ]  
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“Although I’ve often likened EDS/POTS to feeling as if one were both poisoned and electrocuted simultaneously, most unaffected people are unable to relate to the sense of urgency experienced by patients. Instead, patients are forced to “white-knuckle” overwhelming symptoms, sometimes living hour by hour, unable to escape symptoms through sleep or by lying down.”
Brings tears to my eyes everytime I read it.

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Posted: 06 July 2018 03:16 PM   [ Ignore ]   [ # 1 ]  
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This brings tears to my eyes too. It is so “right on”. We could never explain it to anyone that hasn’t experienced it. I one time tried to explain it to a friend that was addicted to heavy drugs for years and she said it sort of sounded like one of her withdrawal episodes when she felt like ending it all because it was so terrible. Having dealt with hyperPOTS, I relate to every word of this paragraph. If there’s anyway you can get to the POTScare clinic in Texas I’ve heard great things about it. Blessings to you and your fight to regain your life.
Terriann

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