My Heds child was accepted into Dr. Diana’s Hydrocephalus study a few years back. He has now developed severe blurred peripheral vision where he can see 3 or 4 letters while reading and everything external to that is blurred. He’s been evaluated by our local Children’s hospital Opthalmalogy, neurology and Visual PT departments and they’ve found nothing. He’s had Mra/I’s, ct/a scans, opthalmalogy did every test, including peripheral field and micro scans. They suggested that my bright 13 year old may have just realized every letter is not in focus as we read and that is normal. I explained he said this is a new symptom but she was keen to say there wasn’t a problem because they could find no problem. Even the peripheral field test showed normal but it’s based on being able to detect bright lights, not how clear or blurred they are. The neurologists say there’s no sign of Chiari malformation.
So, my first question is could this type of visual problem be related to hydrocephalus? He is 13 and in the last month has also developed severe sadness/depression, but only at night. A few days ago woke with a severe headache, vomited and the headache was gone, the vision issue came on in November, faded to almost normal after a few months and is back again. He’s had migraines for years now, does have a high palate, he’s been falling for no reason in the last month, poor memory, has irritability.
So, with all of the experts having gone over this imaging, is it possible they missed some of the subtleties described in the Driscoll theory? Or, there’s mention of an fMRI in the theory, I know there was an MRA done which showed blood flow. Is an FMRI which is mentioned in the theory able to show something additional? What additional testing can they do? My son has given up his computer with the vision issues which is a very big deal to him. The more I read the theory the more concerned I am that permanent damage is being done if this is his problem. Any advice or suggestions would be greatly appreciated.