Australian singer Sia announces Ehlers-Danlos Syndrome
Posted: 07 October 2019 04:44 PM   [ Ignore ]  
Total Posts:  23
Joined  2013-09-16

Sorry to hear this. Sure hope her people find out about Dr. Driscoll and the POTS Care Clinic (Texas, USA 1-866-349-9905). Her doctors are getting much of it wrong.
Kudos for her going public.

Posted: 20 October 2019 03:46 PM   [ Ignore ]   [ # 1 ]  
Total Posts:  1421
Joined  2011-04-19

That was so brave of her, wasn’t it? It’s hard to know if her doctors are getting things wrong, or if it is just bad reporting! wink Hopefully, she doesn’t have POTS! Not everyone with hypermobility or EDS has POTS, but I wonder if many of us are diagnosed with EDS/Hypermobility only after getting sick (usually with POTS). When I first got sick, I had no idea I was hypermobile!


Dr.Diana, therapeutic optometrist disabled by EDS/POTS/ME/CFS for a decade, now recovered and practicing full-time at POTS Care cheese