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Myasthenia Gravis
Posted: 04 October 2012 03:24 PM   [ Ignore ]  
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Has anyone else ever been diagnosed with this? My eye Dr. thinks I have Myasthenia Gravis.  My eye muscles are all either very weak or paralyzed. My throat seems sslightly affected. I am such a nervous wreck since this appointment because she mentioned this possibility as well as Mitochondrial Disease.  She said time is of the essence and I am already farther progressed than some other patients she has seen : (  Any advise or support is very greatly appreciated.

Ang.

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Scared Single Mama in MD
32 years old
Oficially diagnosed with Asthma, Neuropathy, multiple Allergies, IBS, Migraines, TMJ, Cervical Kyphosis and Spondylosis, POTS/Dysautonomia and seeking help for totally disabling symptoms (one Dr. suspects MCAS and lupus but no official dx yet)
Mother of a Beutiful nearly 9 yr.old daughter w/autism and epielepsy

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Posted: 10 October 2012 08:30 PM   [ Ignore ]   [ # 1 ]  
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I had the diagnosis for 7 years prior to heading to the Mayo clinic and getting the real story, it wasnt MG. Do you have positive antibodies and have you had a single fiber EMG which will tell the story its its MG. Most cases of MG can be well controlled with mestinon and immunosuppresants. I also had the droopy eye (ptosis) and swallowing difficulties. Make sure you are getting the right test by a center and doc that specializes in MG.

Brent

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