Are you still looking for CFS/ME individuals? I am interested! Also, are you still looking for the symptom checklist to be submitted? I hit another “dead end” today. I thought POTS explained my symptoms, but CFS seems to be the reoccurring diagnosis. I got mono 10 years ago, and never fully recovered. My symptoms have changed a bit over time (sore throat gone, crash after mild exertion gone), but the most consistent is that I cannot put my arms over my head at all without completely crashing (usually within a few hours and lasting for at least a day or so). I resonate with being an overachiever, having what appears to be Terry’s nails, slight regurgitation on my ECHO, and moving my legs a lot during my sleep study, but my tilt table came back normal. I was shocked. I get dizzy when I stand after squatting and get uncomfortable standing still for even a few min./blowing a balloon/singing while standing in church…I also get headaches (migraines?) and am bothered by bright lights, repetitive sounds/motions/touch. (sensitivity issues) My hands/feet get icy to the touch and I’m generally cold. Thyroid, normal. I am overweight despite eating healthy my whole life. During my latest pregnancy, my amniotic fluid levels got so low I had an emergency c-section despite drinking buckets of water daily. I have chronic neck pain, need full night’s sleep and will have both pain and “allergies” if I don’t get enough sleep. I can’t seem to make headway on a diagnosis or cure, but have altered my life to manage. I’m thankful for the research you’re doing, and have gleaned multiple ideas to check into with another new doctor when I find one! Do I fit the bill for the clinical trials?