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Loss of vision
Posted: 08 November 2012 04:46 AM   [ Ignore ]  
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Hello all,

I am typing fast as I am freaking out as there is a huntsman in my living room AHHHHHHH!!!!
Anyway I lose my vision up to 30 to 40 times a day on a average day more on a bad day. It lasts for up to a minute and can be quite scary.
Does anyone else have this? Here in Australia I even qualify for a guide dog it can be that bad.
Does anyone know what this is?
Hope all is well for everyone and sending much Metta (love)
Steph

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Posted: 11 November 2012 04:37 PM   [ Ignore ]   [ # 1 ]  
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StephS - 08 November 2012 04:46 AM

Hello all,

I am typing fast as I am freaking out as there is a huntsman in my living room AHHHHHHH!!!!
Anyway I lose my vision up to 30 to 40 times a day on a average day more on a bad day. It lasts for up to a minute and can be quite scary.
Does anyone else have this? Here in Australia I even qualify for a guide dog it can be that bad.
Does anyone know what this is?
Hope all is well for everyone and sending much Metta (love)
Steph

Hi Steph, Are you losing vision in both eyes simultaneously? How long does it last? Do you ever get a headache afterwards? I’d need to know more, but it MAY be migraine episodes (vascular events without the headache). I experienced that numerous times a day when I first got sick. It is “basically” harmless (IF that is what you are experiencing), but not so much if it happens when you’re driving (BEEN THERE)! Did you have an eye exam? Will you be sure they run a VEP (visually evoked potential)? That will also help them rule out optic neuritis secondary to multiple sclerosis. Let us know? Big hug, Diana

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Dr.Diana, therapeutic optometrist disabled by EDS/POTS/ME/CFS for a decade, now recovered and practicing full-time at POTS Care cheese

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