i’m new to this forum so i’m just saying hi! I have EDS, PoTS, Gastroparesis, Gastro-oesophageal reflux disorder, fibromyagia, CFS, multiple joint dysplasia, and tons of other problems but these are my most troublesome.
i’m active on a lot of other forums (facebook, butyoudontlooksick, HMSA boards, EDS support uk, ouch too and probably others that i cant think of right now, probably as its 2am here…. oops. meant to go to bed at midnight! ) so you might already know my username. looking forward to posting on these boards, once filters stop discarding all my attempts as it thinks i’m a spammer. tried to post a few times tonight and that’s driving me mad!
anyway…. off on a tangent- sorry! i’m 30, female and a bit crazy (i blame the pain….), love bright colours and so have covered my wheelchair in bright stickers and the wheels in spoke riders and light units (designed for kids bikes) so i’m my own personal disco and often give kids whiplash as they turn to look at me! lol! i adore cats and have my geriatric kitty living here with me (and currently snoring really loudly…. at least one of us is asleep! ), she’s 18 and still going strong. must be due to me spoiling her rotten! i play parabadminton (started about 2 months ago) and totally loving it! i’ve found a physical hobby again! wooohoo! had to give it up 16 years ago as i was too broken to play on foot but had to wait until i got broken enough to get a wheelchair to be able to play again. so i’m very happy at the moment! i’m already quite good so they’re talking about trying out for some of the big teams (like the england wheelchair team… gulp! ) dont think i’m good enough yet though! still need to get a badminton wheelchair as normal chairs tip over to easy, but they’ll move the same so while the club get some i can borrow i’m just trying my best to learn! i adore books and probably have enough to open my own library, and i love to knit and crochet but i’m still learning so a bit rubbish at the moment. can make some great crochet animals though, but my nephew (he’s 4 next week) pinches them as soon as he sees them so i havent got any around me. its very cute- he puts them behind his back and reverses out the door so i cant see he’s got it (but i can cos its super obvious. love how kids think)! lol! )
i’m generally a happy person but prone to bouts of depression, sometimes really bad bouts and i get a bit scared about what i want to do to myself (in those moods i think i’m bad and need to be punished (ie hurt)) but i’ve got a great support network of pals that are great and really helpful. uum, dont know what else to say! i work 3 hours a week for the HR dept of a garden centre (i look out onto all the roses on display, it’s really nice) just to get out f the house as i’m not well enough to do any more. but they’re great and super flexible when i work so i can change my day and time etc if i dont feel up to it (a whole new experience for me!), and i like chocolate and haribo waaaay too much
ooh, best go- a crane fly is trying to incinerate itself in my halogen heater… dont want it to short out the tubes (or go on fire) as i need the unit to work over winter or i’ll get frostbite as my central heating is just too expensive to run!