I am new here but I wonder if you ever speak or do research into stem cell treatments. I came across information on Dr. Yamanaka who just won the Nobel Prize for being able to allow adults to generate more of their own stem cells using their own skin cells, eliminating the need for embyos. He claims that this may lead to a cure for many diseases such as MS, Parkinson’s, Sickle Cell, etc. Some of his research claims that he regerated heart connective tissue! Connective tissue being the key phrase here ! Do you think this could ever lead to treatment for EDSers, vascular and otherwise?
A little background on who I am. I do not have EDS but my 18 yr old daughter does. Life has been a real struggle the past couple of years. She has had 4 surgeries in the past two years, including a C1/C2 fusion, two laterget’s on her shoulders and now feels she needs a thoracic and/or lumbar fusion. She tells me it feels as if her back is just going to snap. I want her to excersize but she is afraid to move too much as one doc told her too much instability in her spine could cause paralysis.
She has so many issues, CFS, very unstable joints, Fibro, POTS, endometriosis we believe, panic attacks and now with her back so bad most of her days are spent in her recliner. She has a beautiful opera voice and received a large scholarship at a prestigious conservatory but is now home on medical leave. Her ribs are subluxing and she cannot sing anymore without there being too much pain, even breathing is painful she says.
Do you think surgeries weaking the body? It seems as soon as she heals from one we’re on to another. I also wonder with her being on pain meds could this be depleting her vitamin levels and causing more instability?
I know I got way off topic, sorry. Wonder if you could give me your thoughts on all this. I know it’s alot!
Thank you - love your videos. Humorous and enlightening - can’t beat that!