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Update on Ketotifen
Posted: 20 February 2013 02:19 PM   [ Ignore ]  
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Just a quick update for people thinking of trying Ketotifen for mast cell treatment.
I was super sensitive to any type of meds and couldnt tolerate ANYTHING! Even anti biotics, which was scarry because sometimes you just have to take them!!! Anyway i am on Ketotifen twice a day and my drug sensitivity is still an issue (it always will be with POTS and EDS) but no where near as serious, and i am feeling a bit better energy wise and my nausea has been helped. So for me it has helped. Its worth giving it a go in my opinion, i had to start off slow, but I am on 2 full tablets a day now, which i didnt ever think i could ever get up to. So it shows you some pills are worth sticking with.

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POTs, EDS III, Chronic migraine, vulvodynia, MCAD

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Posted: 21 February 2013 11:56 AM   [ Ignore ]   [ # 1 ]  
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diamondcut - 20 February 2013 02:19 PM

Just a quick update for people thinking of trying Ketotifen for mast cell treatment.
I was super sensitive to any type of meds and couldnt tolerate ANYTHING! Even anti biotics, which was scarry because sometimes you just have to take them!!! Anyway i am on Ketotifen twice a day and my drug sensitivity is still an issue (it always will be with POTS and EDS) but no where near as serious, and i am feeling a bit better energy wise and my nausea has been helped. So for me it has helped. Its worth giving it a go in my opinion, i had to start off slow, but I am on 2 full tablets a day now, which i didnt ever think i could ever get up to. So it shows you some pills are worth sticking with.

Thank you for mentioning this, Diamondcut! We love Ketotifen at our house! wink

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Dr.Diana, therapeutic optometrist disabled by EDS/POTS/ME/CFS for a decade, now recovered and practicing full-time at POTS Care cheese

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Posted: 28 February 2013 06:03 PM   [ Ignore ]   [ # 2 ]  
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How are you getting your Ketotifen RX? Canada? And if so, how does that work? My doctor would write for it, I just don’t know how/where to get it. Also, what is the cost, approx?

Thanks!

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