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Mast Cells and Food Allergies
Posted: 23 October 2011 12:26 AM   [ Ignore ]  
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I’m in the process of reviewing the information you have posted on Mast Cell disorders and it does make so much sense.  Before we figured out my son’s food allergies (biggest culprit I believe being dairy) he would wake nightly with horribly itchy back, wheezing, and nose running like a faucet at night and daytime asthma symptoms.  I think his allergies, combined with possible mast cell issues were creating a perfect storm for asthma.  Once we removed dairy, his asthma likewise has been all but eliminated.  I’m pursuing your zyrtec/zantac test for myself for brain fog issues.  I saw where you also mention keeping a food diary.  I’d like to second the idea that, in addition to taking histamine-reducing drugs, folks do pursue food allergy testing as they may be initially triggering the histamine-production that can then get out of control when a mast cell disorder is underlying the whole process.  At least, that’s my layman’s take on it.  Correct me where I’m wrong wink

But be sure to pay attention to your own instincts regarding allergies and to find a good doctor to do the allergy testing.  It may have been a fluke but when my son’s allergy doctor found he tested negative for a dairy allergy, then when we had him tested 4 months later by a different doctor (and in the interim he was hospitalize with a pretty serious asthma attack) and he tested positive for dairy, it did make me wonder. And, as I say, removing dairy all but eliminated his asthma symptoms. In hindsight, it did make me question the wisdom of having an asthma doctor test for an allergy that could pretty much eliminate his asthma - and the need for the services of an asthma doctor. May be a good idea to have an impartial third-party test for any food allergies. 

Would like to hear from any other folks on here who could also add asthma to their list of issues.

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Posted: 24 October 2011 02:30 PM   [ Ignore ]   [ # 1 ]  
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Diane - 23 October 2011 12:26 AM

I’m in the process of reviewing the information you have posted on Mast Cell disorders and it does make so much sense.  Before we figured out my son’s food allergies (biggest culprit I believe being dairy) he would wake nightly with horribly itchy back, wheezing, and nose running like a faucet at night and daytime asthma symptoms.  I think his allergies, combined with possible mast cell issues were creating a perfect storm for asthma.  Once we removed dairy, his asthma likewise has been all but eliminated.  I’m pursuing your zyrtec/zantac test for myself for brain fog issues.  I saw where you also mention keeping a food diary.  I’d like to second the idea that, in addition to taking histamine-reducing drugs, folks do pursue food allergy testing as they may be initially triggering the histamine-production that can then get out of control when a mast cell disorder is underlying the whole process.  At least, that’s my layman’s take on it.  Correct me where I’m wrong wink

But be sure to pay attention to your own instincts regarding allergies and to find a good doctor to do the allergy testing.  It may have been a fluke but when my son’s allergy doctor found he tested negative for a dairy allergy, then when we had him tested 4 months later by a different doctor (and in the interim he was hospitalize with a pretty serious asthma attack) and he tested positive for dairy, it did make me wonder. And, as I say, removing dairy all but eliminated his asthma symptoms. In hindsight, it did make me question the wisdom of having an asthma doctor test for an allergy that could pretty much eliminate his asthma - and the need for the services of an asthma doctor. May be a good idea to have an impartial third-party test for any food allergies. 

Would like to hear from any other folks on here who could also add asthma to their list of issues.

Me again! EXCELLENT points! The only thing I would add is that many of us have breathing issues that look and sound like asthma, but it’s not! I COULD NOT breath, but had the methacholine challenge test and was able to “prove” to the pulmonologist that it wasn’t asthma. My son was also “diagnosed” with asthma (without the testing). Amazingly, it was mast cells causing it! (I know you’re shocked. ha). Oh, and if you get your mast cells under control, you may find that some of your allergies disappear. I kid you not. Mast cell doctors and allergists are two different specialties (talk about a turf war!). Big hug, smile Diana

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Dr.Diana, therapeutic optometrist disabled by EDS/POTS/ME/CFS for a decade, now recovered and practicing full-time at POTS Care cheese

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