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new blood pressure changes
Posted: 21 July 2013 10:58 AM   [ Ignore ]  
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my whole life blood pressure was 120/80 even when preg. 5x’s. had tilt table without heart med may 20 2013, blood pressure reading start (95 138/70 (96 pulse)) in 5 min still lying down (93 153/79 96). when they tilted me 1 min into tilt i was (100 165/66 90). my high was 6 min (119 173/65 97). the tech said my blood pressures were all over the place they took extra readings. they later told me my ttt was normal. i did not have an iv? this ttt was different to the one i had in 1994 which i flunked and was told i had POTS. over time do our heart rates and blood pressures change? i 1998 i was in the hospital for 10 days and got up in the morning to use the rest room and while in the rest room people were out side of my door yelling at me if i was ok. here my heart rate went over 210 and i was told to get in bed and not get up. a cardiologist was in my room within a 1/2 hour and with him beside my i could roll over in bed and my heart rate would go over 150. my blood pressure was always stable, now my blood pressure is all out of whack and my heart rate seems a little more stable. has anyone ever heard of or worn something to monitor your blood pressure? right now i’m doing king of hearts for a month and this morning i sent my readings in and the tech said i would go as low as 63 then to 85 which isn’t real high but from kinda of low to 85 it is enough to make my head and eyes hurt she said. last year 48 hour monitor was ave. beat 96, 4 to 5 hours of paroxysmal atrial fibrillation, max hr 214, 325 isolated PVC’s and frequent premature atrial beats. has anyone’s hr changed and then bp went high?

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Posted: 22 July 2013 07:52 PM   [ Ignore ]   [ # 1 ]  
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Hi dab! My HR and blood pressure was crazy, freaking nuts for years! It seemed to have no rhyme or reason to it, and my HR and BP would move in crazy directions, seemingly independent of each other. I’m curious what others have experienced. My BP is generally OK now, but HR can jump up if/when I flush. It’s pretty amazing to watch, actually. I’m sure your doctors will want to make sure you don’t have SVT, AVNRT, or ventricular tachycardia (your cardiologist will know), which may not be POTS related. Instead, ours is usually called “inappropriate sinus tachycardia”. Yes, it is certainly INAPPROPRIATE! Ha. wink

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Dr.Diana, therapeutic optometrist disabled by EDS/POTS/ME/CFS for a decade, now recovered and practicing full-time at POTS Care cheese

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Posted: 24 July 2013 04:06 PM   [ Ignore ]   [ # 2 ]  
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When I was in The National Neurological Hosp in London (9 years ago!) I had a 24 hour ambulatory BP.  If I remember rightly, basically they fit me with a BP cuff and every so often (whilst following a strict schedule of exercises) I had to press a button, which would inflate the cuff and register my BP reading against the time.  I had to fill in a chart of what my activities were, at what particular time, so the technicians could evaluate my BP responses.

As my BP had ‘gone haywire’ since my head and neck injury, I’ve carried out many studies over the years since then.  One set of blood pressures that I took was
    lay down,
    sit up,
    stand up,
    kneel on the floor,
    go on all fours
- boy that was an eye-opener, very volatile BP’s!

Another simple one was:-
    left arm
    right arm
- no mine weren’t the same.

I noticed that every time I was getting a chest tightness or arrhythmia, my Diastolic (the lower reading) was 95 or over.

I noticed that when my legs were acutely hurting, my Pulse Pressure was very low, in the 20’s.  Pulse Pressure is simply calculated by taking the Diastolic (lower reading) from the Systolic (higher reading):-
  e.g. 120/80 = Pulse pressure of 40

Have fun!
Barbara
(UK)

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Posted: 27 July 2013 08:31 PM   [ Ignore ]   [ # 3 ]  
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I know a patient who had her BP checked and it was 92/90. The doctor said, “Well, this is impossible” and checked it again. He got 90/90!!!! I know of someone who is gathering data and folks with low pulse pressures to present to doctors. Let me know if I can send you her way, or better yet, let me see if I can get her on the forum! wink

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Dr.Diana, therapeutic optometrist disabled by EDS/POTS/ME/CFS for a decade, now recovered and practicing full-time at POTS Care cheese

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Posted: 27 July 2013 10:47 PM   [ Ignore ]   [ # 4 ]  
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Hi Diana,
You sure can, it will be great if someone can make constructive use of the studies I’ve carried out over the years because I’m certain there’s pretty strong testing criteria in there somewhere!
Regards
Barbara
(UK)

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Posted: 28 July 2013 11:05 AM   [ Ignore ]   [ # 5 ]  
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Barbara - 27 July 2013 10:47 PM

Hi Diana,
You sure can, it will be great if someone can make constructive use of the studies I’ve carried out over the years because I’m certain there’s pretty strong testing criteria in there somewhere!
Regards
Barbara
(UK)

Just a thought, Barb. Here is someone who is pulling together some case studies and info about low pulse pressures for a doctor to look at. Perhaps you two should compare notes? winkShe’s here: “If you’re not on Facebook, you can write me at .(JavaScript must be enabled to view this email address)
Link to my posts on pulse pressure:
http://potsville.wordpress.com//?s=“pulse+pressure”&search=Go

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Dr.Diana, therapeutic optometrist disabled by EDS/POTS/ME/CFS for a decade, now recovered and practicing full-time at POTS Care cheese

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Posted: 28 July 2013 12:31 PM   [ Ignore ]   [ # 6 ]  
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great you guys tell me what you want me to do? i think my pulse pressure is high. this is reading @ cleveland clinic during ttt, they said ttt was normal; 173/65 equals pulse pressure of 108. i have all the readings from my tilt table that day.
i just did my blood pressure: left arm 150/80 82= pulse pressure of 70.
right arm seconds later: 131/76 85= pulse pressure of 55. isn’t that dumb?
my dr always takes my right arm b/c it’s closer to machine.
pulse pressure is high if over 40???
thanks denise

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