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My story so far…
Posted: 09 August 2013 08:31 PM   [ Ignore ]  
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Hi, I’m glad I discover this website and of course all the great videos and all the informations from Dr. Diana.

I’m a man of 37 yo. I smoke but dont drink coffee.

I had morbid obesity until I had a gastric by-pass surgery at the age of 25 yo. I went from 450 pounds to 190 pounds and I felt great physically until 2008, 7 years after the surgery.

In 2008, I start having orthostaric hypotension for no reason. Also start having panic attacks again especially at the gym but I was used to them and was put on another antidepressant med, Paxil, who worked great to stop all the panic attacks and clonazepam 7 mg day that I take since 2005, same dosage, not working alone for the anxiety but cant stop it cause of bad withdrawal effects…

In 2009, after an hemorrhoids surgery, I start having panic attacks again and wasnt able to take the Paxil at all, even 1 mg was enough to trigger supraventricular tachycardia episode… i become med sensitive, me who was used to take meds with no problem in the past…

My Doc at the time said that it was all anxiety related and not worry… But the whole situation take a very bad turning in the middle of the summer of 2010 when I start fainting when I was taking my shower, fainting while I was driving my car, fainting while I had a bowel movement. Of course, my Doc said it was all anxiety and that sometimes when a panic attack is too strong, the body shut down who explain the fainting since my heart rate was around 160 to 180 every time I faint…

So in the middle of the summer of 2010, I start having chronic tachycardia who last all day long, the orthostaric hypotension get worse, the dizziness every time I had to get up from a sitting position, the constipation, the chronic headache, the neck pain, the legs pain, red legs, purple hands, lack of sweat especially when its hot outside, hot weather intolerance with fast heart rate, dizziness, pounding heart rate all the time, and many other symptoms start being chronic and i had to stop driving my car, and i start also avoinding exercise or doing physical tasks, even mental tasks cause they trigger worse heart related symptoms…

I ask to see a cardiologist, I undergo the usual heart tests, stress test with an echocardiography (was able to do it), nuclear stress test who show a normal ejection fraction of 55, a holter monitor 24 h… The cardiologist said that I may have dysautonomia but a milder form of it. He said that my anxiety was the main problem leading to an overactive sympathetic nervous system who explain the tachycardia, and the other symptoms… No test was done for the fainting episodes, no test to confirm the dysautonomia or pots… The cardiologist only said to drink salty liquid, add salt in my foods but nothing else was done in 2010…

In 2011, things get even worse… i start having agoraphobia and cant leave my house cause of the symptoms i habe who are always worse when im under high anxiety… i ask to see the Cardiologist again and he put me on a beta-blocker, propranolol 30 mg day, who worked great at first and the tachycardia was almost under control but I did had some bouts of tachycardia especially in the morning and excessive fast heart rate with normal physical task like walking or taking a shower or having a bowel movement. The digestive problems increase as well as the cardiovascular symptoms… I start having chest pain, numbness in my left arm, difficulty speaking, short term memory problem, all of those symptoms start also to be chronic…

At the end of 2011, I had 2 intestinal obstructions in a 1 week interval, I had 2 surgeries to repair the intestine, had a jejunostomy tube installed in my small intestine to feed me for 6 months, between January 2011 until I had the intestinal obstructions, my weight went down from 220 pounds to 155 pounds, I was underweight but my Doc was saying that it was all in my head and all anxiety related, saying that I had so many panic attacks a day that it was like I was doing intensive physical activities…

Anyway, in 2012 and 2013, things get worse again, the heart symptoms are all over the place, I’m now dealing with chest pain and left arm numbness all the time, the beta blocker stop working even if we try all of them, my heart rate sit is about 75-80 and just standing without moving bring it into the 130-150 range. My hands are all the time clammy and pinky red, my feet are clammy, my heart is pounding in my chest all the time and its even worse when I lie down in my bed. My blood pressure is weird and usually like 100/80. I feel hot all the time and the only one thing to help that is to put some ice pads on my neck and head. My headache last all day long, have tachycardia who is always worse in the morning, I have difficulty speaking, feel like I’m on adrenaline or illegal drugs all the time, I have no energy, I’m exercise intolerant, all I can do is to sit all day long on the couch and need to nap all the time cause I feel exhausted. Have pain all over my body, muscles pain, double vision, light sensitivity, sound sensitivity, foods intolerance.

The last nuclear stress test I had show a low ejection fraction of 45% in September 2012. Last holter monitor show normal sinusal tachycardia and some PVC’s, I can’t do anything physical cause I feel too weak physically but also mentally, mental task exhaust me like the physical tasks. I’m living in fears of having a heart attack all the time… I will see a new cardiologist soon, but I know that where I live they don’t have a tilt table to test dysautonomia. I need also a change of heart med cause the propranolol do nothing anymore and just make me feel more tired.

Can someone told me if its the usual pictures of pots and dysautonomia OR my symptoms are really all anxiety related OR the dysautonomia and pots lead to worse anxiety so more symptoms? Also is it usual for someone with dysautonomia to be meds sensitive? And the no sweating is it normal?

Thanks for your help -:)

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Posted: 10 August 2013 12:36 AM   [ Ignore ]   [ # 1 ]  
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Hi Vincent, Welcome to the forum—we’re so glad you’re here! This is a lot to cover (none of us are “easy”, believe me), but first, I strongly do not believe your problems are caused by anxiety. Weight loss like what you recently experienced is not a result of anxiety. I think you’re instincts are right to look for a tilt table test and have your catecholamines checked for ‘hyperadrenergic POTS’ while you’re at it. Obviously, you and your doctors don’t want to go down the road of idiopathic dysautonomia, if indeed you have a medical cause which needs to be found first. So I’m sure they’ll want to rule out a few things, as they did with me: carcinoid cancer (easy urine test for that), other cancers, blood clots in the venous sinuses draining the brain, etc. Assuming those all check out fine, and the doctors can find NO REASON for your symptoms, then you’re with us! wink We’ll talk you through it! Have you tried anitihistamines yet? As silly as it seems, many of us have problems with histamine. In our family, a double dose of Zyrtec/Zantac for a couple of weeks made a huge difference for us. Then we were able to drop our dose down. We take Zyrtec a few evenings a week, and Zantac once a week or so. Since you’ve have stomach surgery, it is VERY important to watch for B12 deficiencies. Do you get B12 shots? Why don’t we start with some of these easy things and see how you do? I’m hoping others will chime in here, and get you started… Hang in, my friend. You are not alone in this journey. TRUST ME. We just have to tease this apart—and it can be tricky, but not impossible. You may qualify for a couple of treatment trials I’ll have coming up soon, too! wink

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Dr.Diana, therapeutic optometrist disabled by EDS/POTS/ME/CFS for a decade, now recovered and practicing full-time at POTS Care cheese

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Posted: 10 August 2013 09:12 AM   [ Ignore ]   [ # 2 ]  
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Hi Dr.Diana, thanks for you answer and support! I appreciate it so much. You are the first person to tell me that all my symptoms are not all anxiety related and its helping me to feel more like a normal person, normal but ill for a unknow reason…

First, I live in Quebec City in Canada, here the health system is public, so we don’t pay to see specialists or have tests done. The main problem is that since we don’t pay, we have to wait a longggggg time before seeing a Doc. If you are lucky and can see a cardiologist, he will not order expensive tests if you don’t look very ill…and if th cardiologist order some tests, they will be the regular ones like the hter monitor, EKG, stress test with the echocardiography (can’t walk on the treadmill anymore), nuclear tests like a persantin mibi test, blood pressure monitoring…

I ask to have a tilt table test and the answer I get from my cardiologist is that they don’t have a tilt table in the city where I live. I will have to travel outside the province of the Quebec to have the test done and sadly I can’t travel… Why I can’t travel? Well I can’t cause just being in a car make me feel sick and trigger panic attacks even just as a passenger!!! My anxiety is so bad that I’m disable from work for life…

I lost all that weight before I had the intestinal obstructions. I had and still have so much pain in my intestine that I wasn’t able to eat normally and that’s why I lost all that weight. I stayed 1 month at the hospital after the last surgery I had for the obstruction and had IV feeding with a pic line for 2 weeks and then they start feeding me with the tube by-passing the stomach to make sure I absorb everything. Even with the tube feeding I never was able to gain weight after those 2 surgeries. Right now, my weight is 160 pounds… I have apparently IBS with the big C, the last gastro Doc I saw did the usual colonoscopy and gastroscopy test as well as blood tests for gluten and other foods allergies and she didn’t find anything wrong so she told me I had IBS with C… I only have a tense pelvic floor muscle and cant have a normal bowel movement without using 10 glucerin suppositories. The intestine symptoms are very bad recently,
And I start having the same kind of pain I had before the intestinal obstructions. I’m on a liquid diet low in fiber to prevent futur obstructions but its not helping me and I’m bloated and in pain all the time. My Gastro Doc said that I may need to have another surgery to have a jejunostomy tube place into the small intestine to feed me and gain weight. She think I feel weak and can’t exercise or just do normal physical activity like taking a shower cause I lost all my muscles mass and don’t eat enough.

Of course, I have blood tests regularly for all the vitamins and minerals, thyroid, cholesterol, inflammation. Everything is normal, I have high B12 and folic acid level in my blood who is not usual but the Doc told me it was normal. No anemia, no thyroid problem as well. I had a 24 h urinary test done for the cortisol, adrenaline, noradrenaline, dopamine levels, it was back in 2010 when my anxiety was better and my physical state was also better and my cortisol level was low, adrenaline and noradrenaline was borderline low and dopamine level was normal!!! It was a big surprise since the Doc was thinking that the adrenalin and noradrenaline will be sky high but no.

I don’t understand why my ejection fraction is so low, I don’t have heart failure or enlarged heart. My cardiologist say that the ejection fraction can go up and down, and he say to not worry. But again no other test was done. I tend to have low systolic blood pressure, before I had high blood pressure. I don’t know if its the weight that I lost who did that but I went from 450 to 190 pounds and didn’t had low blood pressure.

I try so many meds, I try the florinef who bring high blood pressure and painful migraine and more panic attacks. I try the clonidine and almost faint from a low 0.05 mg dose. I try all the beta blocker and find out that I can tolerate only low dose of propranolol, the newer ones like the bystolic are the worse for me. I always had allergies problem, as a kid I had bad allergie at summer time, as an adult it’s kinda not that bad, still have allergies but don’t need antihistamine med to control the symptoms… I’m sensitive to antihistaminic meds, had a bad reaction to IV infusion of Gravol and Benadryl at the hospital, also the newer antihistaminic make my heart race and pounding. Right now I take some Prevacid for my stomach pain but its not working anymore. I was on the Zantac years ago before the emergence of newer PPI meds like nexium, Prevacid. Never had problem with it in the past, I have some Zantac pills at home, I should try it today and see how I react? I also have some peptacid that I can try if you think it can help? Witch one is better?

I will see a new cardiologist in 2 weeks and don’t know what to ask to him, maybe you can help me on that? I’m sure he will look at my medical folder and say that my last holter monitor from June is good and same for the blood pressure monitoring, he will probably not want to test me again to see if my ejection fraction is lower than last year but I will ask him. Did you know other tests that can replace the tilt table? It can help me having a real diagnostic and not just having a idiopathic diagnostic of dysautonomia.

Also for the med sensitivity, is it normal? I was used to take 40 mg of Paxil with no side effects, and did try all the other antidepressants at normal dose with no side effect at all, but now I react badly to all the meds… Even react to Ibuprofen, I can’t take it anymore cause my heart rate to crazy, it was the only one effective med for my chronic headache…

Thanks again, Vincent

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Posted: 10 August 2013 10:50 AM   [ Ignore ]   [ # 3 ]  
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It’s me again, I forget some little informations.

I saw 3 neurologist since 2010 for my chronic headache. I had a MRI done of my brain with contrast agent and it was normal. I was put on low dose of an older antidepressant call elavil, but I didn’t take it for more than 1 night cause I had worse tachycardia and orthostaric hypotension. I learn later that the elavil is a member of the TCA antidepressant family, a dirty antidepressant who can affect the heart rhythm and lead to arrhytmia as well as orthostaric hypotension. Anyway, I saw another neurologist who did absolutely nothing, he didn’t wanted to make a new MRI of my brain and said it was chronic headache from anxiety only. I saw another one who do a MRI of my jaw, he said it was normal but he look at my teeth and say I have TMJ and will need a night guard for my mouth to wear at night… I get one from my dentist and it didn’t help me at all and the chronic headache he still there. I return see him and he I do a neve block with cortisone injections in the Arnold nerve behind my head. I had a major spell of anxiety for 2 weeks cause of the cortisone injections! I react badly to cortisone, make my heart symptoms worse and trigger big panic attacks as well… Had to take some cortisone pills before a ct scan of the abdomen and pelvic and was sick for 3 days just from pills of cortisone… I’m also very sensitive to adrenaline, last time I to to the dentist that have some cavities repair, she inject a local anasthesic who contain low dose of adrenaline and my heart start racing to 140 for 2 hours in a row, the dentist had to stop and put some ice pads on my head and let me recover in the office… I return some days later and had local anasthesic injections without adrenaline and didn’t had the fast heart rate but felt everything cause the anasthesic didn’t work on me, I had 10 injections and it didn’t work! My dentist say I’m a medical mystery! She did say that anxiety can block the anasthesic effect… So I guess she said to herself that I was just a crazy anxious guy…

My family doctor, the one I see every 2 months say that I MAY have chronic fatigue syndrome and fibromyalgia but again no test to confirm the diagnostic. He explain that chronic anxiety like mine lead to autonomic nervous system failure and can give those diseases… He absolutely want that I start taking an antidepressant again, he said that it suppress the overactive sympathetic nervous system and help the cardiovascular symptoms, but the main problem is that I react badly to 1 mg of Paxil right now, I did try at least 20 times to start taking the Paxil but never was able to get higher than 1 mg, more than 1 mg is enough to bring me to the ER with long lasting supraventricular tachycardia. I did try the lexapro and had the same reaction and had to go to the ER… It’s so weird cause like I was saying, I took the Paxil and even the lexapro for years at regular dose with no side effects, only weight gain… I was on a maintenance dose of Paxil for years to control the panic disorder and it always work and was free of panic and anxiety for many years…

I had a PDoc before, I saw him for 3 years…. In 2011, when I start having intestinal pain and more cardiovascular symptoms, he deny the fact that I was sick for real and give to me a diagnosic of somatic disorder as well as personality disorder of passive aggressive!!! He did see me lost more than 60 pounds in less than 4 months before the Intstinal obstructions happen and he was saying that it was all somatic, all in my head, not real… When the Intstinal obstructions occur, I was in the psychiatrict hospital for the severe anxiety and the day I had the first obstruction they did nothing, I was in pain in my room, throwing up every 2 minutes, was so weak that I was unable to walk, the PDoc there was saying that it was all in my head and the nurses there was joking about me and say things like you eat too much cake and that’s why you are sick!!!! They leave me in my hospital room alone for 1 night, was sick as hell, they didn’t help me or give some pain meds… Was told to stay calm and stop crying but I was in agony!!! I had to call my mom early in the morning and she come see me and she call herself the ambulance and she get me out of that psychiatrict hospital! When I arrive at the other hospital, I had a pounch of 5 liters of bile in my abdomen who was about to explode, 2 hours later and I will be dead like my gastro Doc said!!! Let me tell you that I never return to see that PDoc!!!! I fill a complaint about the fact that the PDoc and the nurses did nothing to help me but like I was saying we live in a public health system, so the PDoc and nurses didn’t had some kind of punishment for the bad decisions!!!

The main problem is that now in all my medical folders in every hospital where to in my city, they have a copy of the medical report form the psychiatrict hospital, so when I see a cardiologist for example, he look at my medical folder first and see that I have anxiety disorder so all the Doc tend to blame anxiety for all my symptoms and that’s why it’s hard to ask to have other tests done on me for my heart.

I saw a new PDoc recently who did remove the personality disorder from my diagnostic, he also remove the somatic disorder but my real diagnostic is now severe anxiety disorder, panic disorder with agoraphobia, social phobia, general anxiety, post traumatic disorder… The new PDoc told me also that I need to return on an antidepressant like the Paxil to stabilize my nervous system. He also said that I need to stop smoking cause its increasing the activity of th sympathetic nervous system… He said that my anxiety is so bad, he never see that in 30 years of practice!

Anyway, it’s hard to separate the anxiety related symptoms and the real diseases symptoms.

Well thanks again for your help, Vincent

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Posted: 10 August 2013 01:30 PM   [ Ignore ]   [ # 4 ]  
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I just realize that the Zyrtec drug is call reactine, it’s the brand name in Canada. I react badly to it last summer with again same usual tachycardia, urinary retention, migraine and nausea… The only one antihistaminic that I can tolerate is call Hydroxizyne or Vistoril or Atarax in Canada, an old antihistaminic who is sedating but I don’t use it often since it make me feel dizzy…its affecting some serotonin receptors as well and use sometimes for mild anxiety…but its too mild to help my anxiety even at high dose… I think the Reactine is a metabolite of the Hydroxizyne but don’t cross the blood barrier so less central nervous system side effects but again not on me, I have worse side effect from it than from the older Hydroxizyne…

Also in one of your video, you talk about magnesium. I want to point out that my Doc did try on me some IV magnesium treatments, thinking it will help with the pain and muscles weakness. Every time I had an IV treatment of magnesium I had a long lasting migraine of 3 days and more pain and more weakness. I have the same reaction from low dose of oral magnesium, I ordered one brand from the USA call natural calm, highly absorbable magnesium form, effervescent powder that you blend in a liquid…I had the worse migraine of my life after only 1 dose… So I guess I have enough magnesium in my body even if blood test for magnesium level are not accurate of the real level of magnesium in the body…my blood level is right in the middle range.

Sometimes I take 50mg of Potassium especially when I have muscles spasm and its seem to lessen the palpitation…my Doc told me to not take potassium supplement since you can easily overdose and it will lead to arrhytmia..but I find out that for me the potassium is better than the magnesium for the heart..don’t have migraine from potassium and my muscles spasm stop and less palpitation. I don’t use it often cause my blood level of potassium is in the mid range and don’t want to get it higher…

Well, sorry if I write long post here with a lot of informations, just want to be sure that I don’t forget anything…

Thanks again, Vincent

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Posted: 11 August 2013 07:25 PM   [ Ignore ]   [ # 5 ]  
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[quote author=“Vincent” date=”]
I will see a new cardiologist in 2 weeks and don’t know what to ask to him, maybe you can help me on that?

 

 

I think I can answer the dysautonomia part of what you should be asking your cardiologist for.  If there is anything else for your other issues, I do not know anything about it.

You should ask your cardiologist for a referral to an electrophysiologist.  This is a cardiologist that specializes dysautonomia.  The specialist will probably order full autonomic testing. If they know anything about EDS, they will also order head and neck MRIs. 

I had full autonomic testing with the following:

1.  Tilt table test with nitroglycerin provocation.
2.  Catecholamine level determinations.
3.  Intrinsic heart rate.
4.  Beta adrenergic hypersensitivity.
5.  Alpha-adrenergic activity and sensitivity.

MJ

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Posted: 15 August 2013 07:46 PM   [ Ignore ]   [ # 6 ]  
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MJ - 11 August 2013 07:25 PM

You should ask your cardiologist for a referral to an electrophysiologist.  This is a cardiologist that specializes dysautonomia.  The specialist will probably order full autonomic testing. If they know anything about EDS, they will also order head and neck MRIs. 

I had full autonomic testing with the following:

1.  Tilt table test with nitroglycerin provocation.
2.  Catecholamine level determinations.
3.  Intrinsic heart rate.
4.  Beta adrenergic hypersensitivity.
5.  Alpha-adrenergic activity and sensitivity.

MJ

Hi, well, my cardiologist is also an electrophysilogist… Main problem is that no tilt table are accessible where I live and I can’t travel because of my severe panic disorder… Also no money to travel since I don’t work and I’m disable from work for life, have university student loans to refund every month, money for pay the rent and don’t have enough for foods so have help from my family…

I had my catecholamine level check in 2010, a 24 hours urinary test… The results was somewhat weird with low cortisol, was about 60 but need less than 20 to qualify as Addison disease. Epinephrine/adrenaline was not detectable so vey low and noradrenaline was borderline low… But at the time my anxiety and heart symptoms wasn’t the same at all, it was mild compare with now! Sure I will ask for that test again…

B-adrenergic receptors sensitivity, need one. I had one stress test done with dobutamine and the cardiologist had to abord it after only receive 20 seconds of the injection cause my heart rate was already at 200… That’s why they sent me to another test call a persantin mibi nuclear test,
They inject a drug call persantin who narrowing the coronary vessels like vigourus exercise… they do that test on people who cant run on a treadmill or cant have chemical stress test….its to evaluate the patency of the coronary vessels. Anyway, everything is recorded on an EKG when the persantin is injected… They record the EKG for 5 minutes and then inject an antidote to stop the effect of the persantin… You go eat and return 1 hour while you lay down on a table and a MRI machine take pictures of you heart at work… After 20 minutes you can return home and you have to return the next morning, they shoot a mibi , it’s a nuclear contrast agent and they take pictures of your heart at rest… They compare both pictures when the heart work and when it’s not working and they can see things like ejection fraction, evaluation of your blood vessels near the heart, and many more things… It’s better than an echocardiography or a stress test, but not as good as an angiography… Anyway in 2010, I was able to run on the treadmill and reach the target heart rate and have the echocardiography done and my ejection fraction was 60, wasn’t on a beta-blocker back then…  In 2012, I try the treadmill stress test with the echo but wasn’t able to walk on the treadmill cause of the dizziness and also weakness. So the cardiologist just said that he will do the dobutamine test insistead… And I had a bad reaction… The day I had the dobutamine injected, I didn’t take my beta blocker… The cardiologist said that my beta adrenergic receptors are very sensitive to the adrenaline and noradrenaline effect as well… The Persantin drug was also bad, it stress the heart like exercise after all, my blood pressure was sky high and pulse rate was 130 lying on the table! September 2012 my EF was only 45!

Alpha adrenergic receptors are also very sensitive for sure. I took a med call seroquel, it’s an atypical antipsychotic, took it for insomnia so low dose but the main effect is as an antagonist of the alpha 1 adrenergic receptor… Very bad tachycardia from all th meds who affect those receptors… Same thing happen with the mirtazapine (remeron) who is a weird antidepressant med with main action as an agonist of the alpha 2c adrenergic receptor who increase the release of noradrenaline and serotonine in the brain… Low dose act mainly at the H1 receptor as an antagonist… So strong sedation… But tachycardia from that med as well… In fact my panic disorder start again after several years under control, while my old PDoc put me on the seroquel to help my insomnia… I had tachycardia all the time at daytime and that’s what trigger the panic attacks again and that’s when I start having heart related symptoms…

Well, will bring the list of tests you wrote to my cardiologist and will hope he will be able to at least do more testing on me…

I had to go to the ER yesterday, I had and still have bouts of tachycardia, chest pain, left arm numbness, difficulty breathing… I had the usual EKG again, had blood test, X-ray of the lungs, a test done for my lungs to see if I’m having emphysema… Th Doc at the ER say that all my tests are normal… Did had tachycardia in from of him, I show to him that when I’m sit its ok but as soon as I’m standing the heart rate jump by about 35… He said to not worry… And said to ask more tests to my cardio Doc next week… He didn’t wanted to change the propranolol for another med and said that my cardiologist will do that next week… But he told me that the propranolol is probably why I feel so weak and tired… He said a newer beta blocker or better one like bystolic or Coreg will be better for me… I don’t know what to think about that…

I know that I produce more adrenaline and noradrenaline now… I have some clonidine at home but don’t want to try them since I’m already on a beta blocker and don’t want to have rebound hypertension… I remember that the clonidine was ok before going to the gym and keep me from having panic attacks cause my heart rate was too high while I exercised… But never take it to reduce my heart rate only… I don’t know if the clonidine have some protective effect on the heart also like the newer beta blocker or the ace inhibitor?

Well thanks for your help! Vincent

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Posted: 15 August 2013 08:37 PM   [ Ignore ]   [ # 7 ]  
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I’m sorry you had to go to the ER. I hope you are feeling better. It sounds like you are having many difficulties. i am glad you have your family to help you and I am glad that you found this forum grin
MJ

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Posted: 15 August 2013 08:59 PM   [ Ignore ]   [ # 8 ]  
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MJ - 15 August 2013 08:37 PM

I’m sorry you had to go to the ER. I hope you are feeling better. It sounds like you are having many difficulties. i am glad you have your family to help you And I am glad that you found this forum grin
MJ

Hey thanks!!! That’s ok, I just feel awful and can’t think it can be only anxiety related like most of cardiologists think! When you have an anxiety disorder, all the Doc blame anxiety for everything you have… Backpain is anxiety, jaw pain is anxiety, general weakness is anxiety… But it’s not true… I’m alive because my mom call the ambulance when I had my first intestinal obstruction while I was in the psychiatrist hospital as an inpatient and that the old PDoc keep saying it was all in my head and those nurse who was laughing at me, when I was in pain, throwing up every 30 seconds, unable to breath and almost dead in my bed!

Anyway yesterday at the ER they did their work, I go there cause of the tachycardia, chest pain, left arm numbness, lack of breath and dizziness, they did the tests they had to be done and see if I was having a heart attack or congestive heart failure, or a pulmonary disease… They wasn’t there to diagnostic me with pots or dysautonomia… That’s not their job… But I return home with no answer to my symptoms and that’s frustrating… Cause I continue to feel bad and have all those symptoms…

I fear that the new cardiologist will also blame anxiety… So no more test, will probably just change the beta blocker and nothing else… That’s hard to try to convince them that it’s not all in my head…

I understand that anxiety can create or mimic a lot of cardiovascular or other diseases symptoms, but not chronic symptoms for sure… I know my anxiety, I can see the difference between symptoms from a simple panic attack and symptoms who are not from anxiety…

So many things can’t be explain, the med sensitivity that I never had before, the tachycardia, general weakness, not able to take a shower or climb the stairs, dizziness, extreme fatigue, chronic headache… Name it… Too many symptoms who are not from my anxiety and that I don’t know the source…

All I can do is to sit on the couch all day long and feel sick and think about how many time I will stay in that state and how I will be able to recover…

Humm wow, just had a vertigo spell as I’m typing this message, I hate that feeling…

Well, thanks for your help, I appreciate it so much, take care, Vincent

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Posted: 15 August 2013 09:34 PM   [ Ignore ]   [ # 9 ]  
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I’ve been there. Too sick and too weak to do anything at all. So do not worry, it will get better, you will figure this out and this forum will help you. My doctor treated me like it was all depression, but I was depressed because I could not function. She treated me like a hypochondriac.

Now, years later, I have a diagnosis of EDS, Vasovagal Syncope and increased intrinsic heart rate. And based on some pics and videos, Dr. Diana feels that I have CCSVI and hydrocephalus.  I am also being referred to neurosurgery, because my spinal cord is Indented by a disc.  And the only reason they found this, is because I insisted that they do my entire spine on the MRI-not just the neck.

You will get there too. It just takes time.

MJ

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Posted: 05 November 2013 02:47 AM   [ Ignore ]   [ # 10 ]  
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Posted: 05 November 2013 02:50 AM   [ Ignore ]   [ # 11 ]  
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Joined  2013-11-05

tim white is a member of Vimeo, the home for high quality videos and the people who love them.   

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