I am 17 years old and I was diagnosed with Ehlers-Danlos Syndrome type 3 these year in September. The doctor just look and me touch my skin and i needed to show him what i can do and that is it no outer tests.
If I really have EDS is there a possibility that I have some outer problems too?
I have a lot of stomach pain lately and i always had it… it feels like my stomach is burning and i can feel that burning pain all the way down till i don’t go on a wc and my stomach burns in the morning to. Could that be related to EDS?
And I have really strange heart beat. I mean I can sit and do nothing and suddenly my heart would start beating really fast i can feel it in my chest and it is a little bit painful i mean i can feel a pressure. I told my Dr. about it and she looked at me and check my heart beat and than she said she need to do some blood test in case if it is something wrong with my thyroid. but we never did blood test. Could that be related to EDS?
Sometimes i feel really dizzy when i close my eyes… but i thought these is normal till i read comments on FB about POTS. Could that be it or it is just normal thing?
I usually have really low blood pressure.. and i am always really cold.. even at summer… is that just my thing or is that related… i always thought it is because of my anorexia… but now i eat normal since September and i have a bit higher than i used to have but it is still 100/50… i used to have it 80/50….
And my family was always very poor. i mean now we are fine but my dad was really poor when he was young and there was a lot of work to do and no one was diagnosed with EDS. My dad is 60 years old and he was really stretchy as young and he still has really soft and stretchy skin. has joints tighten up and he is not that stretchy. But he had pain in his wrist and back when he was young. and my grand dad had the same symptom’s as my dad. I don’t know for any outer siblings to have it. we don’t see each outer. And i have a sister that is perfectly fine.
i really am despread to hear some answers.. If i ask my personal doctor.. well she says she don’t know… for sure is hard to know every damn syndrome but it is harder for me.. i can’t ask her anything.. and that dr. who diagnosed me just said if i have dislocation i need to come back so they give me an operation…
i post that on POST cause i didn’t know how it works…