Hi my girlfriend has EDS and POTS as well. I was reading and saw the video on The Driscoll Theory. Are there EDSer’s on here that have tried some of the suggestions included there-in? And have you noticed positive ( or negative ) results? And Dr Diana I’ve noticed you comment quite regularly on these posts your input would be very welcomed.Thanks!
Hi Mark, it sounds like you missed most of the drama involved in part two of The Driscoll Theory book? The theory has continued to evolve, and I hope to re-release the book soon, with more information and results of numerous in-house clinical studies to help you and your girlfriend. Meanwhile, you can check on my website under “Additional Resources” for a couple of folks who have been with me through this journey and understand how many people it has helped. Google may be of some assistance, as people around the world have worked with their doctors to lower their intracranial pressure with great success. Interestingly, mast cell activation is now considered part of mainstream science, and is no longer a theory. My research continues concerning our vascular irregularities, their causes, our potential to develop thromboses, and how to improve both blood flow and CSF flow. Although I reached out to many patients on Inspire, sadly, all posts concerning The Driscoll Theory were deleted. :( Unfortunately, there can be an ugly side of medicine, but rest assured, we move ahead to try to help everyone who suffers from this and other neglected “invisible illnesses”. Hang in!