possible chiari or craniocervical instablity issues-in my case , the sliping cci issue causes an audible to me ( and others at times )pop -snap sound /sensation-followed by neuropathic pain spreading down my head base /neck area to the shoulders . My intercranial presure spikes at the same pain wham moment from both perception /and other cranial nerves act up in response too-tininitus, shooting pain in the trigeminal pattern -eye control issues ect , until that sensation of increased presure resolves some .( I am now aware , wearing the hard collar and trying to avoid the movement triggers involved ) .
I do have a decompressed chiari-“failed ” due to eds impacts, and done as surgery long before ties were known . the cci issue is what is said to be causing this sound /sensation pattern .
If this starts to add up toward possible causes for him - PLEASE get him to a chiari /cci aware evaluation within EDS - not a great local neurosurgeons attention—it’s the biggest factor in those who get better with possible surgery’s - or those who get worse when surgery is indicated .
just my first thoughts as a newbie here
Sarah in Paradise