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LOOKING MORE & MORE LIKE DERMATOMYOSITIS
Posted: 14 February 2014 09:48 PM   [ Ignore ]  
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The condition on my hands is looking more and more like dermatomyositis, as Dr. Diana suggested. I am still waiting to see a rheumatologist, but here are some pictures I just took.

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Posted: 21 February 2014 09:32 AM   [ Ignore ]   [ # 1 ]  
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MJ, You’re killing me here! wink When are you going to be checked by your good doctors, my friend? wink

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Dr.Diana, therapeutic optometrist disabled by EDS/POTS/ME/CFS for a decade, now recovered and practicing full-time at POTS Care cheese

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Posted: 21 February 2014 09:57 AM   [ Ignore ]   [ # 2 ]  
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I think I better call to make sure the referral went through!  I did see the allergist/immunologist, and he said all of the pictures were extremely helpful. Especially of the red rash on my hands and what looks like a solid red line at my wrist.  Unfortunately I was so dizzy when I was there, but I did not answer his questions very well.  Based on the bloodwork and 24 hour urine that he ordered, he is testing for mast cells and mastocytosis-are these the same thing?

Right at the moment, the condition on my hands is dormant and has been so for about a week. The wounds are healing but I do have scars, and last night the red rash started up again, but very mild.  When I have these periods of remission, I feel at least 75% better and I can function; life is not so difficult.

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