You are not alone.
Articles & Handouts
Print the basics and latest theories and take them with you to your doctor.
Poem to Dr. Diana from a Patient
Sweet poem of thanks to Dr. Diana from a patient and fellow spoonie. Uplifting and thoughtful.
Magnesium and Ehlers-Danlos syndrome by Heidi Collins, MD
Dr. Collins writes an excellent paper on the importance of magnesium in our diet. This is especially important for those of us with connective tissue disorders such as Ehlers-Danlos syndrome. Dr. Diana summarizes key points in her paper and offers her thoughts.
Income and Expense Report—Prettyill.com to date
Income and Expense Report for Prettyill.com, to date. Please let me know if Dr. Diana inadvertently omitted someone’s donation! Dr. Diana keeps it transparent. Thank you everyone for any help you can offer for our upcoming trials!
Clinical Trials!! How to Participate
This tells you everything you need to know about the upcoming pre-testing for clinical trials for EDS (or joint hypermobility) with dysautonomia (some call it “POTS”), Multiple Sclerosis, Chronic Lyme Disease, Chronic Fatigue (or M.E.), Fibromyalgia, Rheumatoid Arthritis and chronic endometriosis. Free testing starts October 8—check it out TODAY!
HRV and alcohol dependence
Numerous conditions can affect HRV, including alcohol dependence
Stress affects HRV—even doing simple math
Stress can affect HRV, even low level stress like doing simple math equations!
Symptoms Checklist
Can you please fill out this symptoms checklist for us? (and feel free to use it as guidance for your doctors, although they may go deathly pale when they see the number of potential symptoms!) I will compile the results, and would like to get it into a peer-reviewed journal,…
External Communicating hydrocephalus. Early findings in congenital communicating hydrocephalus.
External Communicating hydrocephalus. Early findings in congenital communicating hydrocephalus.
Article concerning IIH and chronic daily headache
“Utility of CSF pressure monitoring to identify idiopathic intracranial hypertension without papilledema in patients with chronic daily headache.
POSTER - Cardiac Effects in the Multiple Sclerosis Patients - Implications to Avoid Restenosis
Dr. Diana Driscoll and Dr. Clair Francomano present an evaluation of molecular, chemical and cellular changes that occur in the multiple sclerosis and Ehlers-Danlos patient leading to left ventricular diastolic dysfunction. Such effects may be systemic, leading to potential causes of restenosis and new treatment options to reduce such systemic…
Poster - Acetazolamide as a Medical Treatment Option for Patients with Neurodegenerative Disease
Acetazolamide as a Medical Treatment Option for Patients with Neurodegenerative Disease in conjunction with, or independent of, CCSVI angioplasty. Dr. Diana Driscoll and Dr. Bill Code reveal the results of their small sample trial using acetazolamide for MS, Chronic Lyme, and Ehlers-Danlos patients with autonomic dysfunctions with overall positive results.
Poster - Vascular Fundus Changes Observed in Patients with High Probablility of CCSVI
Poster presentation for ISNVD. Dr. Diana Driscoll, Dr. Rich Driscoll and Dr. Clair Francomano summarize the fundus findings seen in patients with EDS, MS or both conditions. CCSVI? The eyes have it.
Mast Cell Activation Disease a Concise Practical Guide for Diagnostic Workup and Therapeutic Options
The new protocol for Mast Cell Activation Disease!
Mast Cells and Stress—A Psychoneuroimmunological Perspective
Organic Brain Disease and how it relates to mast cells and many chronic illnesses
Ehlers-Danlos Syndrome and multiple sclerosis: A possible association
This abstract explains how M.S. patients have a 10-11 times greater chance of having EDS than the general population.