You are not alone.
Other great sites to visit.
Our Life with Ehlers-Danlos Syndrome
Hear of one mother’s journey to help her teenage child, and their experience with The Driscoll Theory. Incredible, heart-warming and honest.
POTS and Me - blog by a POTS Care patient
Anneke shares her experiences with POTS and the care she received at POTS Care
Tickle Me Tubies
Handmade feeding tube pads and other tubie products
The Driscoll Theory® Newly Revised is now Available for Purchase
After much delay The Driscoll Theory® Newly Revised is now Available for Purchase as a downloadable PDF. We decided a PDF was the quickest way to get this information to you. The PDF is not printable; however if there is enough demand we’ll see about producing The Driscoll Theory® as a book. Click on the icon or link or icon to buy it now.
A strong advocacy group bringing awareness, education and hope to the entire EDS community!
EDSRegistry.org Take a look!
Angel Lucas (fellow EDSer and Spoonie) and her husband are creating this awesome map of EDSers and where they live! They have much more in store for this site, and your registration can be as confidential as you would like. Please take a look and consider registering! It looks amazing so far!
Great blog about POTS, EDS and family…making it all work!
Illness Sucks but I find the Funny!
Dealing with a chronic (especially invisible) illness can be more than trying! Need a chuckle? I love this site to share some of our outrageous and silly moments. Enjoy!
Dr. Diana’s hubby’s blog. Dr. Rich Driscoll has numerous entries about Ehlers-Danlos syndrome, and the ocular effects of connective tissue disorders. Just click on areas of interest in his word cloud to the right.
Rants and raves by, for, and about those with chronic illness(es). Funny and informative!
Carleigh, a delightful 19 year old dealing with the daily struggles of POTS, has created this website to raise awareness of this debilitating condition. She shares how she copes with it on a daily basis. Inspirational!
EDS Network Cares is a non-profit organization established and driven by EDS patients and family members who share a belief in, and a passion for research and education. This all-volunteer network is led by devoted volunteers whose primary goal is to make a difference in the lives of people who are suffering each and every day from Ehlers-Danlos Syndrome.
Mission: To raise awareness of autonomic nervous system dysfunction and to promote dysautonomia education, support and networking.
The Dysautonomia Information Network (DINET) is a volunteer run 501(c)(3) nonprofit organization.
Please read our disclaimer regarding recommended content on other sites.