Surviving and Thriving with Chronic Illness

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Patient Studies

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NOW COMPLETED Head Circumference Growth in Children with Ehlers-Danlos Who Develop…

This trial is NOW COMPLETED.
This trial involves NO TRAVEL and NO COST to you!
It is known that 33-50% of Classic and Hypermobile Ehlers-Danlos Syndrome patients eventually develop dysautonomia, otherwise known as “POTS” (Postural Orthostatic Tachycardia Syndrome). Some of these patients develop dysautonomia as a result of a retroflexed odontoid, Chiari 1 Malformation or cranial settling and the resulting basilar impression. Many Ehlers-Danlos patients suffer with the same symptomology with no evidence of a cause according to MRI imaging.

It is the author’s hypothesis that low-level External Communicating Hydrocephalus appears to be responsible for the constellation… In: Chronic Fatigue, Ehlers-Danlos, Hydrocephalus, POTS

Head Circumference Growth in Children who Develop Multiple Sclerosis later in life

This trial involves NO TRAVEL and NO COST to you!
Multiple sclerosis patients commonly develop generalized ventricular dilation with or without cerebral atrophy over time. Case studies in the literature have noted some multiple sclerosis patients develop the typical “normal pressure hydrocephalus” triad of dementia, gait disturbance and incontinence which were responsive to shunts.

Many patients with connective tissue disorders (Ehlers-Danlos Syndrome) develop Multiple Sclerosis and studies indicate that in the Multiple Sclerosis population, there exists over 10% more Ehlers-Danlos patients than in the normal population.

Because studies are indicating a form of external communicating hydrocephalus in the Ehlers-Danlos…

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In: Chronic Fatigue, Hydrocephalus, Multiple Sclerosis, Vascular abnormalities

NOW COMPLETED: Multiple Sclerosis or Ehlers-Danlos Syndrome

TITLE: “Vascular Fundus Changes Observed in Patients who may have CCSVI (Chronic Cerebrospinal Venous Insufficiency), Including Patients with Multiple Sclerosis and/or Ehlers-Danlos Syndrome”
This study is NOW COMPLETED
This study is open to patients with multiple sclerosis, or suspected multiple sclerosis, or patients with Ehlers-Danlos Syndrome, or suspected Ehlers-Danlos Syndrome.the study is at NO COST to you, and involves NO TRAVEL.
Anecdotally, we have noticed that many of these patients have sluggish venous outflow, CCSVI and/or compromised CSF fluid dynamics, and these changes are often evident through microscopic views of the patients’ vessels in the back of… In: Ehlers-Danlos, Multiple Sclerosis, POTS, Vascular abnormalities