You are not alone.
Patient Studies
See if you can participate!
NOW COMPLETED Head Circumference Growth in Children with Ehlers-Danlos Who Develop…
This trial is NOW COMPLETED.
This trial involves NO TRAVEL and NO COST to you!
It is known that 33-50% of Classic and Hypermobile Ehlers-Danlos Syndrome patients eventually develop dysautonomia, otherwise known as “POTS” (Postural Orthostatic Tachycardia Syndrome). Some of these patients develop dysautonomia as a result of a retroflexed odontoid, Chiari 1 Malformation or cranial settling and the resulting basilar impression. Many Ehlers-Danlos patients suffer with the same symptomology with no evidence of a cause according to MRI imaging.
It is the author’s hypothesis that low-level External Communicating Hydrocephalus appears to be responsible for the constellation…