Surviving and Thriving with Chronic Illness

You are not alone.

Please share

Results of Symptoms Checklist

Did you send us your symptom checklist if you have Chronic Fatigue Syndrome/ME, POTS, EDS, Chronic Lyme disease or Fibromyalgia? If so – thank you, and the results are in!

"A Checklist for Your Symptoms" - August 2012

We began collecting these symptoms checklists 5 years ago (do you remember this video from June 2011?), looking for what others may have missed in these “invisible illnesses”. We knew there were medical reasons for our illnesses and if we looked hard enough and stayed in the science we could find answers. As a patient, and a mother whose children were also ill, I knew we weren’t dealing with psychosomatic illnesses. This was a beast of a condition that was completely disabling for us – we knew we had to keep looking for answers. And so we have.

The results are in for Chronic Fatigue Syndrome/ME! We analyzed 177 viable checklists and noticed something extraordinary. The majority of patients had the majority of symptoms of Acute Anticholinergic Poisoning. Most patients were displaying dramatic symptoms of low acetylcholine levels – so low that it was as if they had ingested a poison that destroyed their acetylcholine.

Acetylcholine is the neurotransmitter required by the autonomic nervous system (controlling heart rate, digestion, breathing – all of the systems of the body that should be automatic, including the vagus nerve), the central nervous system (used by the brain to help us think and create short-term memories), and the peripheral nervous system (allowing muscle movement). Without sufficient levels of this neurotransmitter, our entire bodies can be affected, yet there is no reliable blood test for deficiency. Instead, doctors are trained to recognize this condition by presentation – something that can easily get missed in chronic illness.

Most importantly, we now have a way to restore our acetylcholine levels safely. We’ve been working on this for a few years, and the results speak for themselves. I hope this information is hugely helpful for you. Although it wasn’t the only thing that was missed with my family and I, it was a critical piece of the puzzle needed to restore our health and to recover from both POTS and Chronic Fatigue Syndrome/ME.

Please share this information with others. This has been a grass roots effort from the beginning, and we can continue to help others as we work toward more answers and publish the data for our doctors.

The white paper can be found here:

More information on correcting this properly can be found at

To learn more, please see my presentation for The University of Houston College of Optometry. Part 2 of 3 discusses this finding here:

Let’s continue to change our worlds, one brain cell at a time if we have to.

Gentle hugs to you all,

Dr. Diana 

Please share