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Surviving and Thriving with Chronic Illness

Archives 2011

Video Results

Video: EDS Primer

Dr. Diana as Patient explains the various forms of Ehlers-Danlos Syndrome (EDS) In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Orthopedic Issues, POTS 72 Comments | View

Video: Great Ideas to Improve our Functionality

Dr. Diana discusses numerous ways to increase functionality, sleep, comfort and how to create a life around our illnesses. In: Chronic Fatigue, Coping, Pain Control 34 Comments | View

Video: Yea! We’re up and running—please check us out!

Dr. Diana as Patient has CCSVI, angioplasty, Ehlers-Danlos Syndrome, POTS, dysautonomia, and high pressure on her brain. She has lots of new information, on-going studies and recommendations to reduce symptoms and improve the quality of your life. In: 42 Comments | View

Resource Results

Handout for your eye doctor.

Bring this with you next time you visit your eye doctor.

View | Articles & Hand-outs

Dr. Francomano’s CCI article

Syndrome of occipitoatlantoaxial hypermobility, cranial settling, and Chiari malformation Type I in patients with hereditary disorders of connective tissue

View | Articles & Hand-outs

NOW COMPLETED: Multiple Sclerosis or Ehlers-Danlos Syndrome

TITLE: “Vascular Fundus Changes Observed in Patients who may have CCSVI (Chronic Cerebrospinal Venous Insufficiency), Including Patients with Multiple Sclerosis and/or Ehlers-Danlos Syndrome”
This study is NOW COMPLETED
This study is open to patients with multiple sclerosis, or suspected multiple sclerosis, or patients with Ehlers-Danlos Syndrome, or suspected Ehlers-Danlos Syndrome.the study is at NO COST to you, and involves NO TRAVEL.
Anecdotally, we have noticed that many of these patients have sluggish venous outflow, CCSVI and/or compromised CSF fluid dynamics, and these changes are often evident through microscopic views of the patients’ vessels in the back of the eyes. Other changes in these vessels have also been noted. The knowledge gained from this study may help guide us as to the legitimacy of CCSVI and treatment via angioplasty, and may underscore the similarities and overlap of patient profiles with these conditions. All patients will undergo an initial evaluation for Ehlers-Danlos via a measure of their flexibility through the use of the Beighton scale. There is no cost for patients and results of the study will be provided for all participants. You can download the consent form here, or call us at Total Eye Care, Colleyville, Texas at 817.416.0333.  Clinicaltrials.gov NCT01367977

View | Studies

Product Results

Men’s Classic Satin Pajama Set and Sleep Mask

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Apothecary Products Flents Quiet Please Foam Ear Plugs

Best Price: $11.99
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Bucky Eye Shades

Best Price: $12.20
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Divatex Home Fashions Royal Opulence Satin Sheet Set Red

Best Price: $23.68
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Soft Silky Satin Solid Purple 4pc Deep Pocket Sheet Set for Queen Bed

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Divatex Home Fashions Royal Opulence Satin Sheet Set Zebra

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Futuro Soft Cervical Collar

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Chillow Comfort Device

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