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Surviving and Thriving with Chronic Illness

Archives 2011

Video Results

Video: POTS and Dysautonomia

Dr. Diana (a patient and doctor) explains POTS and dysautonomia. How do you know if you have it -- even a test to try at home! In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Multiple Sclerosis, POTS 13 Comments | View

Video: Classic Ehlers-Danlos

Dr. Diana describes the Classic form of Ehlers-Danlos (EDS) and how to differentiate it from the Hypermobility type. In: Chronic Fatigue, Ehlers-Danlos, Hydrocephalus, Orthopedic Issues, POTS 4 Comments | View

Video: Meet Dr. Diana As Patient

Dr. Diana has Ehlers-Danlos (EDS), CCSVI, POTS, dysautonomia, symptoms of multiple sclerosis. As both a patient and doctor (therapeutic optometrist), she offers help and new theories on causes and treatment for these disorders. In: Chronic Fatigue, Ehlers-Danlos, POTS, Vascular abnormalities 7 Comments | View

Resource Results

EDS Diagnostic Approach

Differentiating the different types of EDS

View | Articles & Hand-outs

EDS Revised Nosology

The six major types of EDS explained

View | Articles & Hand-outs

Echocardiographic Findings in EDS

Cardiac complications discovered with EDS

View | Articles & Hand-outs

EhlersDanlosNetwork.org

EDS Network Cares is a non-profit organization established and driven by EDS patients and family members who share a belief in, and a passion for research and education. This all-volunteer network is led by devoted volunteers whose primary goal is to make a difference in the lives of people who are suffering each and every day from Ehlers-Danlos Syndrome.

Online Resources

PotsPlace.com

Mission: To raise awareness of autonomic nervous system dysfunction and to promote dysautonomia education, support and networking.
The Dysautonomia Information Network (DINET) is a volunteer run 501(c)(3) nonprofit organization.

Online Resources

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