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Surviving and Thriving with Chronic Illness

Archives 2012

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Video: Overwhelmed, anyone?

I haven't quite fallen off of the face of the earth, but am certainly overwhelmed! Please forgive my slow responses to so many, as I dig my way through finishing clinical trials, preparing for ISNVD, professional abstracts, finishing Part 2 of The Driscoll Theory (I need to stop adding to it!) and trying to help my kids and I simultaneously. Agh! This too shall pass, my friends In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, POTS, Vascular abnormalities 6 Comments | View

Video: Dr. Diana’s talk at the Second Annual CCSVI Conference in NY

Dr. Sal Sclafani welcomes Dr. Diana as she speaks about CCSVI, EDS, MS, mast cell disease and her ideas on preventing restenosis post-angioplasty. (Correction - there are no mast cells in the kidney. There are mast cells in the bladder.). smile In: Chronic Fatigue, Ehlers-Danlos, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, POTS, Vascular abnormalities 9 Comments | View

Video: E-patient Dave on TED!

E-Patient Dave gives an entertaining talk about how social media -- used at his doctor's suggestion -- saved his life. Whether it is The Driscoll Theory that pertains to you, or not, this will motivate you to remain captain of your ship, and to work with doctors who are willing to be partners in your care! LOVE THIS!! In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Orthopedic Issues, Pain Control, POTS, Vascular abnormalities 5 Comments | View

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