Surviving and Thriving with Chronic Illness

Archives 2013

Video Results

Video: Inspiring! A 15 year old creates detection device for deadly cancers!

Jack Andraka, age 15, wins Intel ISEF award for his device to detect some cancers earlier, more quickly and at a drastically reduced cost than traditional testing. He is my inspiration. Do you doubt that a (geeky) therapeutic optometrist could uncover the layers of many 'invisible illnesses'? Please keep your minds open! Innovative thinking can occur in unexpected places. A MUST SEE! In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, POTS 58 Comments | View

Resource Results

Diet Sodas Heighten Risk for Vascular Disorders

Important information for those of us with vascular disorders. Watch those diet sodas!

View | Articles & Hand-outs

Patient Develops Dysautonomia When Struck by Lightning

A patient develops dysautonomia when struck by lightening. No one knows why he develops Post Traumatic Stress Syndrome! wink

View | Articles & Hand-outs

Surgical Failures—Don’t miss EDS!

Abstract discussing how the diagnosis of EDS is often missed prior to surgery—complicating the procedure and recovery. Surgeons! You don’t want to miss this!

View | Articles & Hand-outs

Poor response to anesthetics in EDS Hypermobile type

Great for your doctors! This article states that anesthetics are less effective in EDS, Hypermobile form.

View | Articles & Hand-outs

Salt linked to autoimmune diseases

One reason Dr. Diana is trying to find and treat the SOURCE of POTS / Dysautonomia . EDS/POTS patients are prone to developing a vast array of autoimmune disorders, including M.S., Rheumatoid Arthritis, psoriasis, etc. This article explains why the typical recommendation of salt loading may harm us (and our endothelium) in the long run. A MUST READ!

View | Articles & Hand-outs

Low iron storage and anemia in adolescents with POTS

Another clue and something to watch for in our kids. Anemia and low iron storage is common in POTS / dysautonomia. It’s important to have the source of the anemia evaluated.

View | Articles & Hand-outs

NOW COMPLETED: Symptoms Checklist for EDS

A checklist for your symptoms. If you have ever had a symptom, please check “yes”. You can return this form to me by emailing it back to Thank you so much for helping us all!

View | Studies

Illness Sucks but I find the Funny!

Dealing with a chronic (especially invisible) illness can be more than trying! Need a chuckle? I love this site to share some of our outrageous and silly moments. Enjoy!

Online Resources

Dr. Diana’s hubby’s blog. Dr. Rich Driscoll has numerous entries about Ehlers-Danlos syndrome, and the ocular effects of connective tissue disorders. Just click on areas of interest in his word cloud to the right.

Online Resources

Product Results

No products match this date.