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Surviving and Thriving with Chronic Illness

Archives 2013

Video Results

Video: Collagen disorders - it may not be Ehlers-Danlos syndrome!

Dr. Diana discusses a couple of the rarer collagen disorders that may be underdiagnosed. She discusses Stickler syndrome, Marshall syndrome, the eye effects involved and loss of hearing In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Orthopedic Issues, Pain Control, POTS, Vascular abnormalities 12 Comments | View

Video: Gastroparesis and IBS Treatment Trial Sign Up Begins!

If you have Gastroparesis (even if intermittent), delayed gastric emptying, chronic constipation, IBS, episodic diarrhea with constipation AND have dysautonomia and/or EDS and/or Chronic Fatigue Syndrome ("M.E."), it's time to sign up for treatment trials! Instructions attached here! http://bit.ly/13HDhbx In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, POTS 14 Comments | View

Resource Results

NOW COMPLETED: Gastroparesis and IBS Treatment Trial Sign Up Begins - Instructions here!

Instructions and information about signing up for the treatment trial for gastroparesis, chronic constipation, IBS, delayed gastric emptying (etc) as found in dysautonomia in Ehlers-Danlos syndrome, Joint Hypermobility syndrome, POTS, Chronic Fatigue Syndrome (or M.E.) and fibromyalgia. This is a PDF and you will need Adobe Acrobat to see it (free download).

View | Studies

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