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Surviving and Thriving with Chronic Illness

Category: "Mast Cell Disease"

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Video: Free MCAS wallet card!

Dr. Diana offers a wallet card for MCAS (Mast Cell Activation) sufferers. She discusses what happened to her and why she carries this card with her. Important for most EDS/POTS and MS patients. In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Mast Cell Disease, POTS 52 Comments | View

Video: POTS - What Have We Been Missing? Part 3

Dr. Diana Driscoll discusses missing pieces of the puzzle for POTS and Chronic Fatigue Syndrome. Correct the underlying problem, don't just treat the symptoms! In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, POTS, Vascular abnormalities 115 Comments | View

Video: POTS—what have we been missing? Part 2

Dr. Diana Driscoll reveals missing aspects of POTS and Chronic Fatigue Syndrome that have been missed in the past. Part 2 concerning fatigue and gastroparesis is groundbreaking! Thank you to The University of Houston College of Optometry In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, POTS, Vascular abnormalities 52 Comments | View

Video: POTS - What Have We Been Missing - Part 1

The University of Houston College of Optometry welcomes Dr. Diana Driscoll as she discusses "POTS -- What Have We Been Missing?". Dr. Driscoll presents the role of abnormal intracranial pressure in many patients as the first clue that we are missing too much in this condition. Dr. Driscoll speaks as a patient and a mom of patients who were able to recover from disabling POTS. In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Mast Cell Disease, POTS, Vascular abnormalities 71 Comments | View

Video: POTS Care Opens!

The day has arrived! We are happy to announce the opening of POTS Care -- geared to help patients with Idiopathic POTS (often found with EDS, Chronic Fatigue Syndrome or Chronic Lyme disease). Dr. Diana, a former patient with POTS, is now part of a team helping those with this form of POTS that doesn't usually respond well to symptomatic treatment. In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, POTS 58 Comments | View

Video: Mast cell disorders—New Protocol (updated)

Dr. Diana discusses the new protocol for diagnosing mast cell activation syndrome (MCAS), and asks us to consider -- could other histamine producers be to blame? In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Mast Cell Disease, POTS 18 Comments | View

Video: Gastrocrom costs HOW MUCH?! (updated)

Need help with mast cells (MCAS) and POTS? Can't afford Gastrocrom? Help is here! In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, POTS 22 Comments | View

Video: The Driscoll Theory Validated!

Join Dr. Diana as she discusses how the experts in EDS, Joint Hypermobility Syndrome, and autonomic function ("POTS", dysautonomia, etc) speak about how treatment based on The Driscoll Theory results in definite improvement of patient symptoms! Have you been waiting to hear about validation of The Driscoll Theory? This will get you started in understanding the experiences of some of the top experts in the field. In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Pain Control, POTS, Vascular abnormalities 34 Comments | View

Video: Hyperadrenergic POTS - Why so much suffering?

Dr. Diana, as patient, explains a few reasons why hyperadrenergic POTS patients suffer so much. POTS/dysautonomia involves many "invisible" systems that can be difficult to explain to doctors and loved ones. This video will help explain what is happening and what can be done to help the patient and those who care for them. In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Mast Cell Disease, Pain Control, POTS 18 Comments | View

Video: RAW DaM Data!

Dr. Diana discusses the importance of getting a copy of your RAW data! Essential for rare disease and invisible illnesses. Thanks to my friends at www.ACMImimi.org for their great work with music and medicine! Direct link to their video on DaM Data is here: http://youtu.be/0gpk-fbfg4Y In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Orthopedic Issues, Pain Control, POTS, Vascular abnormalities 39 Comments | View

Video: Urine in our Invisible Illnesses! Eww…

Dr. Diana's research into invisible illnesses continues with your help! Do you have M.E./CFS (Chronic Fatigue Syndrome), dysautonomia, POTS with or without Ehlers-Danlos syndrome or Joint Hypermobility, rheumatoid arthritis, Chronic Lyme Disease, Multiple Sclerosis or Lupus? Let's look at your urine! In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, POTS 22 Comments | View

Video: Spoonie Relationships and Dr. Sharon

Dr. Diana and Dr. Sharon, psychiatrist and spoonie with EDS and POTS discuss relationships and Valentine's Day ideas. Relationships can be difficult for the healthy! Listen in for their discussion of our special challenges and hear some thoughts as to why traditions are still important in a relationship. In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Pain Control, POTS 94 Comments | View

Video: The Magic of Magnesium

Dr. Collins writes an excellent paper on the importance of magnesium in our diet. This is especially important for those of us with connective tissue disorders such as Ehlers-Danlos syndrome. Dr. Diana summarizes key points in her paper and offers her thoughts. A MUST SEE! http://prettyill.com/downloads/Magnesium_and_EDS_by_Heidi_Collins,_MD.pdf In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Orthopedic Issues, Pain Control, POTS 18 Comments | View

Video: Suicidal thoughts and depression

Dr. Diana discusses depression and suicide ideation -- two very common symptoms in dysautonomia and numerous invisible illnesses, including M.S., EDS, fibromyalgia, chronic fatigue or "M.E.", rheumatoid arthritis, lupus and endometriosis. Always reach out for help if you experience this symptom, and understand it is a reversible symptom. In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Mast Cell Disease, Multiple Sclerosis, Orthopedic Issues, Pain Control, POTS, Vascular abnormalities 16 Comments | View

Video: Clinical Trials!! How to Participate

Clinical trial pretesting is STARTING ON OCT 9! No charge to you! Chronic fatigue (or M.E.), Multiple Sclerosis, Rheumatoid Arthritis, chronic endometriosis, Fibromyalgia, Dysautonomia with EDS (or joint hypermobility), Chronic Lyme Disease. Limited number of patients can be accepted; by appt only. Contact us today!!!! In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Pain Control, POTS, Vascular abnormalities 38 Comments | View

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Resource Results

Should dysautonomia patients get the flu vaccine?

It’s a tough call for many of us—should dysautonomia patients get the flu vaccine? We often times will flare with symptoms after the vaccine, but is the flare worse than the flare we’d experience with the flu? It’s a decision each one of us grapples with every year! Here’s an abstract concerning this tendency to flare.

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In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Mast Cell Disease, Multiple Sclerosis, POTS

Diet Sodas Heighten Risk for Vascular Disorders

Important information for those of us with vascular disorders. Watch those diet sodas!

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In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, POTS, Vascular abnormalities

Our Life with Ehlers-Danlos Syndrome

Hear of one mother’s journey to help her teenage child, and their experience with The Driscoll Theory. Incredible, heart-warming and honest.

Online Resources In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, POTS

The Driscoll Theory® Newly Revised is now Available for Purchase

After much delay The Driscoll Theory® Newly Revised is now Available for Purchase as a downloadable PDF. We decided a PDF was the quickest way to get this information to you. The PDF is not printable; however if there is enough demand we’ll see about producing The Driscoll Theory® as a book.  Click on the icon or link or icon to buy it now. Buy Now

Online Resources In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Orthopedic Issues, Pain Control, POTS, Vascular abnormalities

NOW COMPLETED: Symptoms Checklist for EDS

A checklist for your symptoms. If you have ever had a symptom, please check “yes”. You can return this form to me by emailing it back to Clinical_Trials@Prettyill.com. Thank you so much for helping us all!

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In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, POTS

Poem to Dr. Diana from a Patient

Sweet poem of thanks to Dr. Diana from a patient and fellow spoonie. Uplifting and thoughtful.

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In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Pain Control, POTS

Magnesium and Ehlers-Danlos syndrome by Heidi Collins, MD

Dr. Collins writes an excellent paper on the importance of magnesium in our diet. This is especially important for those of us with connective tissue disorders such as Ehlers-Danlos syndrome. Dr. Diana summarizes key points in her paper and offers her thoughts.

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View | Articles & Hand-outs

In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Mast Cell Disease, Multiple Sclerosis, Orthopedic Issues, Pain Control, POTS

FAQ’s

Dr. Diana answers some of the most common questions here.

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In: Chronic Fatigue, Ehlers-Danlos, Mast Cell Disease, Multiple Sclerosis

Mast Cell Activation Disease a Concise Practical Guide for Diagnostic Workup and Therapeutic Options

The new protocol for Mast Cell Activation Disease!

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In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, POTS, Vascular abnormalities

Mast Cells and Stress—A Psychoneuroimmunological Perspective

Organic Brain Disease and how it relates to mast cells and many chronic illnesses

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In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Mast Cell Disease, Multiple Sclerosis, Pain Control, POTS, Vascular abnormalities

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DeSouza’s 100% Pure Liquid Chlorophyll

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