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Surviving and Thriving with Chronic Illness

Category: "Vascular abnormalities"

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Video: POTS - What Have We Been Missing? Part 3

Dr. Diana Driscoll discusses missing pieces of the puzzle for POTS and Chronic Fatigue Syndrome. Correct the underlying problem, don't just treat the symptoms! In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, POTS, Vascular abnormalities 88 Comments | View

Video: POTS—what have we been missing? Part 2

Dr. Diana Driscoll reveals missing aspects of POTS and Chronic Fatigue Syndrome that have been missed in the past. Part 2 concerning fatigue and gastroparesis is groundbreaking! Thank you to The University of Houston College of Optometry In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, POTS, Vascular abnormalities 38 Comments | View

Video: POTS - What Have We Been Missing - Part 1

The University of Houston College of Optometry welcomes Dr. Diana Driscoll as she discusses "POTS -- What Have We Been Missing?". Dr. Driscoll presents the role of abnormal intracranial pressure in many patients as the first clue that we are missing too much in this condition. Dr. Driscoll speaks as a patient and a mom of patients who were able to recover from disabling POTS. In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Mast Cell Disease, POTS, Vascular abnormalities 49 Comments | View

Video: Aortic root size—our frightening experience!

Marfans! and EDS! and Loeys-Dietz Syndrome! Oh MY! Aortic root size is critical. An example of why we need our own data for this and other testing. In: Ehlers-Danlos, Vascular abnormalities 27 Comments | View

Video: The Driscoll Theory Validated!

Join Dr. Diana as she discusses how the experts in EDS, Joint Hypermobility Syndrome, and autonomic function ("POTS", dysautonomia, etc) speak about how treatment based on The Driscoll Theory results in definite improvement of patient symptoms! Have you been waiting to hear about validation of The Driscoll Theory? This will get you started in understanding the experiences of some of the top experts in the field. In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Pain Control, POTS, Vascular abnormalities 24 Comments | View

Video: RAW DaM Data!

Dr. Diana discusses the importance of getting a copy of your RAW data! Essential for rare disease and invisible illnesses. Thanks to my friends at www.ACMImimi.org for their great work with music and medicine! Direct link to their video on DaM Data is here: http://youtu.be/0gpk-fbfg4Y In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Orthopedic Issues, Pain Control, POTS, Vascular abnormalities 25 Comments | View

Video: Dysautonomia and Vascular Abnormalities

Dr. Diana discusses vascular abnormalities (and their treatments) found with EDS and dysautonomia. In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Multiple Sclerosis, POTS, Vascular abnormalities 12 Comments | View

Video: Suicidal thoughts and depression

Dr. Diana discusses depression and suicide ideation -- two very common symptoms in dysautonomia and numerous invisible illnesses, including M.S., EDS, fibromyalgia, chronic fatigue or "M.E.", rheumatoid arthritis, lupus and endometriosis. Always reach out for help if you experience this symptom, and understand it is a reversible symptom. In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Mast Cell Disease, Multiple Sclerosis, Orthopedic Issues, Pain Control, POTS, Vascular abnormalities 15 Comments | View

Video: Clinical trial testing and Financials

Dr. Diana as Patient gives a status report for pre-clinical trial testing being offered (at no charge) for invisible illnesses such as dysautonomia and Ehlers-Danlos syndrome, chronic fatigue, fibromyalgia, chronic Lyme disease, RA and endometriosis. Financials for Prettyill are also disclosed. In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Multiple Sclerosis, POTS, Vascular abnormalities 9 Comments | View

Video: Clinical Trials!! How to Participate

Clinical trial pretesting is STARTING ON OCT 9! No charge to you! Chronic fatigue (or M.E.), Multiple Sclerosis, Rheumatoid Arthritis, chronic endometriosis, Fibromyalgia, Dysautonomia with EDS (or joint hypermobility), Chronic Lyme Disease. Limited number of patients can be accepted; by appt only. Contact us today!!!! In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Pain Control, POTS, Vascular abnormalities 28 Comments | View

Video: Thrombosis anyone? MTHFR results!

MUST SEE if you have an autoimmune or neurodegenerative condition. Our risk of thrombosis. Dr. Diana shares the results of her genetic tests from "23andme". Does she have the MTHFR genetic defect? In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Pain Control, POTS, Vascular abnormalities 15 Comments | View

Video: My POTS is gone—was it angioplasty? Uh, no.

POTS, one aspect of dysautonomia is GONE for me. Working with the root of the problem (as opposed to treating the symptoms via salt-loading, etc) may be the key for many of us with dysautonomia (EDS, chronic fatigue, fibromyalgia, M.S., chronic Lyme, etc). Setting up clinical trials now. If interested, please send your contact information to "volunteers@Prettyill.com". If you'd like to help, please let me know! smile In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, POTS, Vascular abnormalities 11 Comments | View

Video: A checklist for your symptoms!

Can you help complete this checklist of symptoms for us? We would like to get our plethora of potential symptoms in a peer-reviewed journal. This will help us with disability claims, dealing with schools, and getting out to physicians the extent of illness we can suffer. You can find it here: http://prettyill.com/resources/articles This is under the "Articles and Publications" section on the right-hand column of Prettyill.com. Thank you so much! Please spread the word! smile In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, POTS, Vascular abnormalities 28 Comments | View

Video: Finding a DOCTOR!

This is the hardest question I receive from patients. How can I find a doctor who understands my condition? Which doctors are following "The Driscoll Theory"? Let's share, shall we? In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Orthopedic Issues, Pain Control, POTS, Vascular abnormalities 14 Comments | View

Video: Somebody, HELP ME!

Can you help me? My website is rocking (great!), but I can't keep up (not great). Do you have any time to devote to the cause? Gentle hugs to you all.... In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Mast Cell Disease, Multiple Sclerosis, POTS, Vascular abnormalities 9 Comments | View

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Resource Results

EDS Hypermobility type may be the same as TNX deficiency?

MUST READ article explaining how TNX deficiency may account for most of the Hypermobility forms of EDS! Better yet? This deficiency can actually be beneficial to the heart!

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In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, POTS, Vascular abnormalities

A case of EDS and recurrent venous thrombosis—ONE CASE?

A case of venous thrombosis in EDS. ONE CASE, Dr. Diana asks. Her research is showing a high prevalence of venous thromboses in EDS patients, even without genetic abnormalities of clotting.

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In: Ehlers-Danlos, Fibromyalgia, Multiple Sclerosis, POTS, Vascular abnormalities

Diet Sodas Heighten Risk for Vascular Disorders

Important information for those of us with vascular disorders. Watch those diet sodas!

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In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, POTS, Vascular abnormalities

Surgical Failures—Don’t miss EDS!

Abstract discussing how the diagnosis of EDS is often missed prior to surgery—complicating the procedure and recovery. Surgeons! You don’t want to miss this!

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In: Ehlers-Danlos, Fibromyalgia, Orthopedic Issues, Pain Control, Vascular abnormalities

Salt linked to autoimmune diseases

One reason Dr. Diana is trying to find and treat the SOURCE of POTS / Dysautonomia . EDS/POTS patients are prone to developing a vast array of autoimmune disorders, including M.S., Rheumatoid Arthritis, psoriasis, etc. This article explains why the typical recommendation of salt loading may harm us (and our endothelium) in the long run. A MUST READ!

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In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Multiple Sclerosis, Pain Control, POTS, Vascular abnormalities

The Driscoll Theory® Newly Revised is now Available for Purchase

After much delay The Driscoll Theory® Newly Revised is now Available for Purchase as a downloadable PDF. We decided a PDF was the quickest way to get this information to you. The PDF is not printable; however if there is enough demand we’ll see about producing The Driscoll Theory® as a book.  Click on the icon or link or icon to buy it now. Buy Now

Online Resources In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Orthopedic Issues, Pain Control, POTS, Vascular abnormalities

EDS Today

A strong advocacy group bringing awareness, education and hope to the entire EDS community!

Online Resources In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Orthopedic Issues, Pain Control, POTS, Vascular abnormalities

TheEyeDocBlog.com

Dr. Diana’s hubby’s blog. Dr. Rich Driscoll has numerous entries about Ehlers-Danlos syndrome, and the ocular effects of connective tissue disorders. Just click on areas of interest in his word cloud to the right.

Online Resources In: Ehlers-Danlos, Hydrocephalus, POTS, Vascular abnormalities

External Communicating hydrocephalus. Early findings in congenital communicating hydrocephalus.

External Communicating hydrocephalus. Early findings in congenital communicating hydrocephalus.

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In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Multiple Sclerosis, POTS, Vascular abnormalities

Article concerning IIH and chronic daily headache

“Utility of CSF pressure monitoring to identify idiopathic intracranial hypertension without papilledema in patients with chronic daily headache.

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In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Multiple Sclerosis, POTS, Vascular abnormalities

POSTER - Cardiac Effects in the Multiple Sclerosis Patients - Implications to Avoid Restenosis

Dr. Diana Driscoll and Dr. Clair Francomano present an evaluation of molecular, chemical and cellular changes that occur in the multiple sclerosis and Ehlers-Danlos patient leading to left ventricular diastolic dysfunction. Such effects may be systemic, leading to potential causes of restenosis and new treatment options to reduce such systemic chemical changes.

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In: Ehlers-Danlos, Multiple Sclerosis, Vascular abnormalities

Poster -  Acetazolamide as a Medical Treatment Option for Patients with Neurodegenerative Disease

Acetazolamide as a Medical Treatment Option for Patients with Neurodegenerative Disease in conjunction with, or independent of, CCSVI angioplasty. Dr. Diana Driscoll and Dr. Bill Code reveal the results of their small sample trial using acetazolamide for MS, Chronic Lyme, and Ehlers-Danlos patients with autonomic dysfunctions with overall positive results.

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In: Ehlers-Danlos, Multiple Sclerosis, Vascular abnormalities

Poster - Vascular Fundus Changes Observed in Patients with High Probablility of CCSVI

Poster presentation for ISNVD. Dr. Diana Driscoll, Dr. Rich Driscoll and Dr. Clair Francomano summarize the fundus findings seen in patients with EDS, MS or both conditions. CCSVI? The eyes have it.

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In: Ehlers-Danlos, Multiple Sclerosis, Vascular abnormalities

Mast Cell Activation Disease a Concise Practical Guide for Diagnostic Workup and Therapeutic Options

The new protocol for Mast Cell Activation Disease!

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In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, POTS, Vascular abnormalities

Mast Cells and Stress—A Psychoneuroimmunological Perspective

Organic Brain Disease and how it relates to mast cells and many chronic illnesses

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In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Mast Cell Disease, Multiple Sclerosis, Pain Control, POTS, Vascular abnormalities

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