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Surviving and Thriving with Chronic Illness

Category: "Pain Control"

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Video: The Driscoll Theory Validated!

Join Dr. Diana as she discusses how the experts in EDS, Joint Hypermobility Syndrome, and autonomic function ("POTS", dysautonomia, etc) speak about how treatment based on The Driscoll Theory results in definite improvement of patient symptoms! Have you been waiting to hear about validation of The Driscoll Theory? This will get you started in understanding the experiences of some of the top experts in the field. In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Pain Control, POTS, Vascular abnormalities 34 Comments | View

Video: Hyperadrenergic POTS - Why so much suffering?

Dr. Diana, as patient, explains a few reasons why hyperadrenergic POTS patients suffer so much. POTS/dysautonomia involves many "invisible" systems that can be difficult to explain to doctors and loved ones. This video will help explain what is happening and what can be done to help the patient and those who care for them. In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Mast Cell Disease, Pain Control, POTS 18 Comments | View

Video: RAW DaM Data!

Dr. Diana discusses the importance of getting a copy of your RAW data! Essential for rare disease and invisible illnesses. Thanks to my friends at www.ACMImimi.org for their great work with music and medicine! Direct link to their video on DaM Data is here: http://youtu.be/0gpk-fbfg4Y In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Orthopedic Issues, Pain Control, POTS, Vascular abnormalities 39 Comments | View

Video: Spoonie Relationships and Dr. Sharon

Dr. Diana and Dr. Sharon, psychiatrist and spoonie with EDS and POTS discuss relationships and Valentine's Day ideas. Relationships can be difficult for the healthy! Listen in for their discussion of our special challenges and hear some thoughts as to why traditions are still important in a relationship. In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Pain Control, POTS 94 Comments | View

Video: The Magic of Magnesium

Dr. Collins writes an excellent paper on the importance of magnesium in our diet. This is especially important for those of us with connective tissue disorders such as Ehlers-Danlos syndrome. Dr. Diana summarizes key points in her paper and offers her thoughts. A MUST SEE! http://prettyill.com/downloads/Magnesium_and_EDS_by_Heidi_Collins,_MD.pdf In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Orthopedic Issues, Pain Control, POTS 18 Comments | View

Video: Suicidal thoughts and depression

Dr. Diana discusses depression and suicide ideation -- two very common symptoms in dysautonomia and numerous invisible illnesses, including M.S., EDS, fibromyalgia, chronic fatigue or "M.E.", rheumatoid arthritis, lupus and endometriosis. Always reach out for help if you experience this symptom, and understand it is a reversible symptom. In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Mast Cell Disease, Multiple Sclerosis, Orthopedic Issues, Pain Control, POTS, Vascular abnormalities 16 Comments | View

Video: Clinical Trials!! How to Participate

Clinical trial pretesting is STARTING ON OCT 9! No charge to you! Chronic fatigue (or M.E.), Multiple Sclerosis, Rheumatoid Arthritis, chronic endometriosis, Fibromyalgia, Dysautonomia with EDS (or joint hypermobility), Chronic Lyme Disease. Limited number of patients can be accepted; by appt only. Contact us today!!!! In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Pain Control, POTS, Vascular abnormalities 38 Comments | View

Video: Thrombosis anyone? MTHFR results!

MUST SEE if you have an autoimmune or neurodegenerative condition. Our risk of thrombosis. Dr. Diana shares the results of her genetic tests from "23andme". Does she have the MTHFR genetic defect? In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Pain Control, POTS, Vascular abnormalities 16 Comments | View

Video: Finding a DOCTOR!

This is the hardest question I receive from patients. How can I find a doctor who understands my condition? Which doctors are following "The Driscoll Theory"? Let's share, shall we? In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Orthopedic Issues, Pain Control, POTS, Vascular abnormalities 16 Comments | View

Video: External Communicating Hydrocephalus

Dr. Diana discusses external communicating hydrocephalus in EDS -- how to recognize it, how it is often misdiagnosed, and how to treat it! In: Ehlers-Danlos, Hydrocephalus, Pain Control, POTS 36 Comments | View

Video: Invisible illness—another bad day at the doctor’s office!

This patient with invisible illness describes how most of us feel when we visit our doctors. Be sure to watch to the end, where he gives a shout-out to Dr. Diana! www.Prettyill.com Dysautonomia, EDS, Fibromyalgia, Chronic Lyme, Chronic Fatigue Syndrome, M.E. and numerous other "invisible illnesses" are frustrating for most doctors, and force patients to try to flounder for themselves. This needs to change quickly, because every day, every hour, these patients are suffering. In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Pain Control, POTS 20 Comments | View

Video: Judges announced for Spoonie Art Contest!

Dr. Diana announces the judges for our Spoonie Art Contest! Don't miss the deadline - Sept 30! In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Pain Control, POTS 12 Comments | View

Video: Collagen disorders - it may not be Ehlers-Danlos syndrome!

Dr. Diana discusses a couple of the rarer collagen disorders that may be underdiagnosed. She discusses Stickler syndrome, Marshall syndrome, the eye effects involved and loss of hearing In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Orthopedic Issues, Pain Control, POTS, Vascular abnormalities 12 Comments | View

Video: Best Spoonie Art Contest!

DEADLINE EXTENDED TO SEPT 30! All "bugs" on forum are now fixed! Yeah! So, if you are a creative spoonie, please join us in our "Best Spoonie Art Contest"! You can enter on the forum at Prettyill.com. In this video, Dr. Diana discusses how this will work. Any and all art, music, writing, etc is acceptable, as long as a spoonie (chronically ill patient) has made it! Deadline is the end of Sept, 2013. Don't miss the fun! wink In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Pain Control, POTS 12 Comments | View

Video: E-patient Dave on TED!

E-Patient Dave gives an entertaining talk about how social media -- used at his doctor's suggestion -- saved his life. Whether it is The Driscoll Theory that pertains to you, or not, this will motivate you to remain captain of your ship, and to work with doctors who are willing to be partners in your care! LOVE THIS!! In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Orthopedic Issues, Pain Control, POTS, Vascular abnormalities 17 Comments | View

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Resource Results

Surgical Failures—Don’t miss EDS!

Abstract discussing how the diagnosis of EDS is often missed prior to surgery—complicating the procedure and recovery. Surgeons! You don’t want to miss this!

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In: Ehlers-Danlos, Fibromyalgia, Orthopedic Issues, Pain Control, Vascular abnormalities

Poor response to anesthetics in EDS Hypermobile type

Great for your doctors! This article states that anesthetics are less effective in EDS, Hypermobile form.

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In: Coping, Ehlers-Danlos, Fibromyalgia, Orthopedic Issues, Pain Control

Salt linked to autoimmune diseases

One reason Dr. Diana is trying to find and treat the SOURCE of POTS / Dysautonomia . EDS/POTS patients are prone to developing a vast array of autoimmune disorders, including M.S., Rheumatoid Arthritis, psoriasis, etc. This article explains why the typical recommendation of salt loading may harm us (and our endothelium) in the long run. A MUST READ!

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In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Multiple Sclerosis, Pain Control, POTS, Vascular abnormalities

The Driscoll Theory® Newly Revised is now Available for Purchase

After much delay The Driscoll Theory® Newly Revised is now Available for Purchase as a downloadable PDF. We decided a PDF was the quickest way to get this information to you. The PDF is not printable; however if there is enough demand we’ll see about producing The Driscoll Theory® as a book.  Click on the icon or link or icon to buy it now. Buy Now

Online Resources In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Orthopedic Issues, Pain Control, POTS, Vascular abnormalities

EDS Today

A strong advocacy group bringing awareness, education and hope to the entire EDS community!

Online Resources In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Orthopedic Issues, Pain Control, POTS, Vascular abnormalities

Potsie Mama

Great blog about POTS, EDS and family…making it all work!

Online Resources In: Coping, Ehlers-Danlos, Fibromyalgia, Pain Control, POTS

Illness Sucks but I find the Funny!

Dealing with a chronic (especially invisible) illness can be more than trying! Need a chuckle? I love this site to share some of our outrageous and silly moments. Enjoy!

Online Resources In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Multiple Sclerosis, Pain Control, POTS

Poem to Dr. Diana from a Patient

Sweet poem of thanks to Dr. Diana from a patient and fellow spoonie. Uplifting and thoughtful.

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In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Pain Control, POTS

Magnesium and Ehlers-Danlos syndrome by Heidi Collins, MD

Dr. Collins writes an excellent paper on the importance of magnesium in our diet. This is especially important for those of us with connective tissue disorders such as Ehlers-Danlos syndrome. Dr. Diana summarizes key points in her paper and offers her thoughts.

Download Now

View | Articles & Hand-outs

In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Mast Cell Disease, Multiple Sclerosis, Orthopedic Issues, Pain Control, POTS

Mast Cells and Stress—A Psychoneuroimmunological Perspective

Organic Brain Disease and how it relates to mast cells and many chronic illnesses

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In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Mast Cell Disease, Multiple Sclerosis, Pain Control, POTS, Vascular abnormalities

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