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Surviving and Thriving with Chronic Illness

Category: "Orthopedic Issues"

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Video: RAW DaM Data!

Dr. Diana discusses the importance of getting a copy of your RAW data! Essential for rare disease and invisible illnesses. Thanks to my friends at www.ACMImimi.org for their great work with music and medicine! Direct link to their video on DaM Data is here: http://youtu.be/0gpk-fbfg4Y In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Orthopedic Issues, Pain Control, POTS, Vascular abnormalities 39 Comments | View

Video: The Magic of Magnesium

Dr. Collins writes an excellent paper on the importance of magnesium in our diet. This is especially important for those of us with connective tissue disorders such as Ehlers-Danlos syndrome. Dr. Diana summarizes key points in her paper and offers her thoughts. A MUST SEE! http://prettyill.com/downloads/Magnesium_and_EDS_by_Heidi_Collins,_MD.pdf In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Orthopedic Issues, Pain Control, POTS 18 Comments | View

Video: Suicidal thoughts and depression

Dr. Diana discusses depression and suicide ideation -- two very common symptoms in dysautonomia and numerous invisible illnesses, including M.S., EDS, fibromyalgia, chronic fatigue or "M.E.", rheumatoid arthritis, lupus and endometriosis. Always reach out for help if you experience this symptom, and understand it is a reversible symptom. In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Mast Cell Disease, Multiple Sclerosis, Orthopedic Issues, Pain Control, POTS, Vascular abnormalities 16 Comments | View

Video: Finding a DOCTOR!

This is the hardest question I receive from patients. How can I find a doctor who understands my condition? Which doctors are following "The Driscoll Theory"? Let's share, shall we? In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Orthopedic Issues, Pain Control, POTS, Vascular abnormalities 16 Comments | View

Video: EDS Primer

Dr. Diana as Patient explains the various forms of Ehlers-Danlos Syndrome (EDS) In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Orthopedic Issues, POTS 39 Comments | View

Video: Collagen disorders - it may not be Ehlers-Danlos syndrome!

Dr. Diana discusses a couple of the rarer collagen disorders that may be underdiagnosed. She discusses Stickler syndrome, Marshall syndrome, the eye effects involved and loss of hearing In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Orthopedic Issues, Pain Control, POTS, Vascular abnormalities 12 Comments | View

Video: E-patient Dave on TED!

E-Patient Dave gives an entertaining talk about how social media -- used at his doctor's suggestion -- saved his life. Whether it is The Driscoll Theory that pertains to you, or not, this will motivate you to remain captain of your ship, and to work with doctors who are willing to be partners in your care! LOVE THIS!! In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Orthopedic Issues, Pain Control, POTS, Vascular abnormalities 17 Comments | View

Video: Spoonie Holidays

Dr. Diana, as patient, shares with you her holiday spoonie tricks for survival! In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Orthopedic Issues, Pain Control, POTS, Vascular abnormalities 13 Comments | View

Video: Meet our EDS Dog!

Dr. Diana shows you her Ehlers-Danlos (EDS) dog! In: Coping, Ehlers-Danlos, Orthopedic Issues 16 Comments | View

Video: My Symptoms - Part 1

Dr. Diana, as Patient, explains what the symptoms of dysautonomia, POTS, Ehlers-Danlos and CCSVI feel like. You'll hear the progression of her symptoms over the last 7 years. In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Multiple Sclerosis, Orthopedic Issues, POTS, Vascular abnormalities 13 Comments | View

Video: Classic Ehlers-Danlos

Dr. Diana describes the Classic form of Ehlers-Danlos (EDS) and how to differentiate it from the Hypermobility type. In: Chronic Fatigue, Ehlers-Danlos, Hydrocephalus, Orthopedic Issues, POTS 12 Comments | View

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Resource Results

Surgical Failures—Don’t miss EDS!

Abstract discussing how the diagnosis of EDS is often missed prior to surgery—complicating the procedure and recovery. Surgeons! You don’t want to miss this!

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In: Ehlers-Danlos, Fibromyalgia, Orthopedic Issues, Pain Control, Vascular abnormalities

Poor response to anesthetics in EDS Hypermobile type

Great for your doctors! This article states that anesthetics are less effective in EDS, Hypermobile form.

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In: Coping, Ehlers-Danlos, Fibromyalgia, Orthopedic Issues, Pain Control

The Driscoll Theory® Newly Revised is now Available for Purchase

After much delay The Driscoll Theory® Newly Revised is now Available for Purchase as a downloadable PDF. We decided a PDF was the quickest way to get this information to you. The PDF is not printable; however if there is enough demand we’ll see about producing The Driscoll Theory® as a book.  Click on the icon or link or icon to buy it now. Buy Now

Online Resources In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Orthopedic Issues, Pain Control, POTS, Vascular abnormalities

EDS Today

A strong advocacy group bringing awareness, education and hope to the entire EDS community!

Online Resources In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Orthopedic Issues, Pain Control, POTS, Vascular abnormalities

Magnesium and Ehlers-Danlos syndrome by Heidi Collins, MD

Dr. Collins writes an excellent paper on the importance of magnesium in our diet. This is especially important for those of us with connective tissue disorders such as Ehlers-Danlos syndrome. Dr. Diana summarizes key points in her paper and offers her thoughts.

Download Now

View | Articles & Hand-outs

In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Mast Cell Disease, Multiple Sclerosis, Orthopedic Issues, Pain Control, POTS

EDS Diagnostic Approach

Differentiating the different types of EDS

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In: Chronic Fatigue, Ehlers-Danlos, Hydrocephalus, Orthopedic Issues, POTS

EDS Revised Nosology

The six major types of EDS explained

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In: Chronic Fatigue, Ehlers-Danlos, Orthopedic Issues, POTS

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