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Surviving and Thriving with Chronic Illness

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Video: Free MCAS wallet card!

Dr. Diana offers a wallet card for MCAS (Mast Cell Activation) sufferers. She discusses what happened to her and why she carries this card with her. Important for most EDS/POTS and MS patients. In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Mast Cell Disease, POTS 62 Comments | View

Video: POTS - What Have We Been Missing? Part 3

Dr. Diana Driscoll discusses missing pieces of the puzzle for POTS and Chronic Fatigue Syndrome. Correct the underlying problem, don't just treat the symptoms! In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, POTS, Vascular abnormalities 138 Comments | View

Video: POTS—what have we been missing? Part 2

Dr. Diana Driscoll reveals missing aspects of POTS and Chronic Fatigue Syndrome that have been missed in the past. Part 2 concerning fatigue and gastroparesis is groundbreaking! Thank you to The University of Houston College of Optometry In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, POTS, Vascular abnormalities 61 Comments | View

Video: POTS - What Have We Been Missing - Part 1

The University of Houston College of Optometry welcomes Dr. Diana Driscoll as she discusses "POTS -- What Have We Been Missing?". Dr. Driscoll presents the role of abnormal intracranial pressure in many patients as the first clue that we are missing too much in this condition. Dr. Driscoll speaks as a patient and a mom of patients who were able to recover from disabling POTS. In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Mast Cell Disease, POTS, Vascular abnormalities 95 Comments | View

Video: POTS Care Opens!

The day has arrived! We are happy to announce the opening of POTS Care -- geared to help patients with Idiopathic POTS (often found with EDS, Chronic Fatigue Syndrome or Chronic Lyme disease). Dr. Diana, a former patient with POTS, is now part of a team helping those with this form of POTS that doesn't usually respond well to symptomatic treatment. In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, POTS 82 Comments | View

Video: Aortic root size—our frightening experience!

Marfans! and EDS! and Loeys-Dietz Syndrome! Oh MY! Aortic root size is critical. An example of why we need our own data for this and other testing. In: Ehlers-Danlos, Vascular abnormalities 51 Comments | View

Video: Mast cell disorders—New Protocol (updated)

Dr. Diana discusses the new protocol for diagnosing mast cell activation syndrome (MCAS), and asks us to consider -- could other histamine producers be to blame? In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Mast Cell Disease, POTS 24 Comments | View

Video: Diamox and Alkalinity (updated)

Have IIH or hydrocephalus and need help with Diamox? Staying alkaline helps -- here's how. In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Multiple Sclerosis, POTS 31 Comments | View

Video: Gastrocrom costs HOW MUCH?! (updated)

Need help with mast cells (MCAS) and POTS? Can't afford Gastrocrom? Help is here! In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, POTS 24 Comments | View

Video: Let’s talk about Diamox! updated

Diamox can be used to lower intracranial pressure in folks with IIH and hydrocephalus allowing many to avoid brain shunts (and many patients with EDS can avoid neck fusions and Chiari surgery! The use of Diamox can be tricky -- let's chat about that! In: Ehlers-Danlos, Hydrocephalus, Multiple Sclerosis, POTS 22 Comments | View

Video: The Driscoll Theory book is now available!

In: 33 Comments | View

Video: The Driscoll Theory Validated!

Join Dr. Diana as she discusses how the experts in EDS, Joint Hypermobility Syndrome, and autonomic function ("POTS", dysautonomia, etc) speak about how treatment based on The Driscoll Theory results in definite improvement of patient symptoms! Have you been waiting to hear about validation of The Driscoll Theory? This will get you started in understanding the experiences of some of the top experts in the field. In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Pain Control, POTS, Vascular abnormalities 36 Comments | View

Video: Your eyes and EDS - What is truth, what is myth?

Dr. Diana focuses on the ocular truths and myths related to collagen disorders, such as EDS (Ehlers-Danlos syndrome). Are we more prone to glaucoma or macular degeneration? What is up with this Dry Eye Syndrome? Are we candidates for LASIK? These questions and more are discussed, along with announcements about current and upcoming research and medication. In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, POTS 35 Comments | View

Video: Hyperadrenergic POTS - Why so much suffering?

Dr. Diana, as patient, explains a few reasons why hyperadrenergic POTS patients suffer so much. POTS/dysautonomia involves many "invisible" systems that can be difficult to explain to doctors and loved ones. This video will help explain what is happening and what can be done to help the patient and those who care for them. In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Mast Cell Disease, Pain Control, POTS 24 Comments | View

Video: RAW DaM Data!

Dr. Diana discusses the importance of getting a copy of your RAW data! Essential for rare disease and invisible illnesses. Thanks to my friends at www.ACMImimi.org for their great work with music and medicine! Direct link to their video on DaM Data is here: http://youtu.be/0gpk-fbfg4Y In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, Orthopedic Issues, Pain Control, POTS, Vascular abnormalities 42 Comments | View

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Folic Acid and Lowered Immunity

A high folic acid intake could lead to lowered immunity to viruses and cancer.

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Overeating and Depression

A new study finds that overeating could lead to depression and anxiety.

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Early Life Exercise and Health

Early life exercise could be linked to lasting brain and metabolic health

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Raynaud ’s phenomenon in Women

A new study finds that the previously thought harmless Raynaud’s phenomenon could lead to increased mortality in women.

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Long Term Opioid Use and Depression

Use of opioids for longer than 30 days could cause increased risk of depression.

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Inflammation and Depression

Are you depressed? You may also be inflamed…

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Symptoms Checklist for Chronic Fatigue Syndrome/M.E.

Please complete this symptoms checklist for patients 12 years of age and older by putting a “1” in the appropriate column. Please return your completed checklist by emailing it to Volunteers@Prettyill.com. Thank you for helping us to get answers to help us all!

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In: Chronic Fatigue

NOW COMPLETED: Gastroparesis and IBS Treatment Trial Sign Up Begins - Instructions here!

Instructions and information about signing up for the treatment trial for gastroparesis, chronic constipation, IBS, delayed gastric emptying (etc) as found in dysautonomia in Ehlers-Danlos syndrome, Joint Hypermobility syndrome, POTS, Chronic Fatigue Syndrome (or M.E.) and fibromyalgia. This is a PDF and you will need Adobe Acrobat to see it (free download).

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In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, POTS

Should dysautonomia patients get the flu vaccine?

It’s a tough call for many of us—should dysautonomia patients get the flu vaccine? We often times will flare with symptoms after the vaccine, but is the flare worse than the flare we’d experience with the flu? It’s a decision each one of us grapples with every year! Here’s an abstract concerning this tendency to flare.

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In: Chronic Fatigue, Coping, Ehlers-Danlos, Fibromyalgia, Mast Cell Disease, Multiple Sclerosis, POTS

New gene found for EDS!

Yet another new gene found for EDS! It’s name? B3GALT6 (kinda’ catchy!)

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In: Ehlers-Danlos, Fibromyalgia, POTS

EDS Hypermobility type may be the same as TNX deficiency?

MUST READ article explaining how TNX deficiency may account for most of the Hypermobility forms of EDS! Better yet? This deficiency can actually be beneficial to the heart!

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In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, POTS, Vascular abnormalities

A case of EDS and recurrent venous thrombosis—ONE CASE?

A case of venous thrombosis in EDS. ONE CASE, Dr. Diana asks. Her research is showing a high prevalence of venous thromboses in EDS patients, even without genetic abnormalities of clotting.

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In: Ehlers-Danlos, Fibromyalgia, Multiple Sclerosis, POTS, Vascular abnormalities

Diet Sodas Heighten Risk for Vascular Disorders

Important information for those of us with vascular disorders. Watch those diet sodas!

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In: Chronic Fatigue, Ehlers-Danlos, Fibromyalgia, Hydrocephalus, Mast Cell Disease, Multiple Sclerosis, POTS, Vascular abnormalities

Patient Develops Dysautonomia When Struck by Lightning

A patient develops dysautonomia when struck by lightening. No one knows why he develops Post Traumatic Stress Syndrome! wink

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In: Chronic Fatigue, Coping, POTS

Surgical Failures—Don’t miss EDS!

Abstract discussing how the diagnosis of EDS is often missed prior to surgery—complicating the procedure and recovery. Surgeons! You don’t want to miss this!

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In: Ehlers-Danlos, Fibromyalgia, Orthopedic Issues, Pain Control, Vascular abnormalities

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Ear buds you can sleep in—and use as an eye cover!

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Digestive Enzymes

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Soothing Digestive Aid

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